Allen, J., Oyebode, J. R. and Allen, J. (2009). Having a father with young onset dementia: the impact on well-being of young people. Dementia, 8, 455–480.
Ballard, C., Lowery, K., Powell, I., O'Brien, J. and James, I. (2000). Impact of behavioral and psychological symptoms of dementia on caregivers. International Psychogeriatrics, 12, 93–105.
Bryan, G. and Martin, C. M. (2005). Unique problems of dementia in the younger patient. The Consultant Pharmacist, 20, 468–479.
Cahill, S. et al. (2008). The attitudes and practices of general practitioners regarding dementia diagnosis in Ireland. International Journal of Geriatric Psychiatry, 23, 663–669.
Clare, L. (2002). Developing awareness about awareness in early-stage dementia: the role of psychosocial factors. Dementia, 1, 295–312.
Clark, P. C. et al. (2005). Impediments to timely diagnosis of Alzheimer's disease in African Americans. Journal of the American Geriatrics Society, 53, 2012–2017.
Connell, C. M., Boise, L., Stuckey, J. C., Holmes, S. B. and Hudson, M. L. (2004). Attitudes toward the diagnosis and disclosure of dementia among family caregivers and primary care physicians. Gerontologist, 44, 500–507.
Corbin, J. and Strauss, A. (1990). Grounded theory research: procedures, canons, and evaluative criteria. Qualitative Sociology, 13, 3–21.
de Vugt, M. E. et al. (2003). Behavioural disturbances in dementia patients and quality of the marital relationship. International Journal of Geriatric Psychiatry, 18, 149–154.
de Vugt, M. E. et al. (2006). Impact of behavioural problems on spousal caregivers: a comparison between Alzheimer's disease and frontotemporal dementia. Dementia and Geriatric Cognitive Disorders, 22, 35–41.
Derksen, E., Vernooij-Dassen, M., Gillissen, F., Rikkert, M. O. and Scheltens, P. (2006). Impact of diagnostic disclosure in dementia on patients and carers: qualitative case series analysis. Aging and Mental Health, 10, 525–531.
Endacott, R. (2008). Clinical research: 4. Qualitative data collection and analysis. International Emergency Nursing, 16, 48–52.
Eustace, A. et al. (2007). Behavioural disturbance triggers recognition of dementia by family informants. International Journal of Geriatric Psychiatry, 22, 574–579.
Folstein, M. F., Folstein, S. E. and McHugh, P. R. (1975). “Mini-mental state”: a practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189–198.
Glaser, B. G. and Strauss, A. L. (1967). The Discovery of Grounded Theory: Strategies for Qualitative Research, Chicago: Aldine Publishing Company.
Hansen, E. C., Hughes, C., Routley, G. and Robinson, A. L. (2008). General practitioners’ experiences and understandings of diagnosing dementia: factors impacting on early diagnosis. Social Science and Medicine, 67, 1776–1783.
Harris, P. B. and Keady, J. (2004). Living with early onset dementia: exploring the experience and developing evidence-based guidelines for practice. Alzheimer's Care Quarterly, 5, 111–122.
Iliffe, S. et al. (2009). Primary care and dementia: 1. Diagnosis, screening and disclosure. International Journal of Geriatric Psychiatry, 24, 895–901.
Kelley, B. J., Boeve, B. F. and Josephs, K. A. (2009). Cognitive and noncognitive neurological features of young-onset dementia. Dementia and Geriatric Cognitive Disorders, 27, 564–571.
Krull, A. C. (2005). First signs and normalizations: caregiver routes to the diagnosis of Alzheimer's disease. Journal of Aging Studies, 19, 407–417.
Leung, K. K. et al. (2011). Pathways to diagnosis: exploring the experiences of problem recognition and obtaining a dementia diagnosis among Anglo-Canadians. Health and Social Care in the Community. Epublished ahead of print.
Luscombe, G., Brodaty, H. and Freeth, S. (1998). Younger people with dementia: diagnostic issues, effects on carers and use of services. International Journal of Geriatric Psychiatry, 13, 323–330.
Marsden, C. D. and Harrison, M. J. (1972). Outcome of investigation of patients with presenile dementia. British Medical Journal, 2, 249–52.
McMurtray, A., Clark, D. G., Christine, D. and Mendez, M. F. (2006). Early-onset dementia: frequency and causes compared to late-onset dementia. Dementia and Geriatric Cognitive Disorders, 21, 59–64.
Mendez, M. F. (2006). The accurate diagnosis of early-onset dementia. International Journal of Psychiatry in Medicine, 36, 401–412.
Miyoshi, K. (2009). What is early onset dementia? Psychogeriatrics, 9, 67–72.
Muhr, T. (2004). ATLAS.ti 5.0. Berlin: ATLAS.ti Scientific Software Development GmbH. Available at: http://www.atlasti.com/.
Newens, A. J., Forster, D. P. and Kay, D. W. (1994). Referral patterns and diagnosis in presenile Alzheimer's disease: implications for general practice. British Journal of General Practice, 44, 405–407.
Paton, J., Johnston, K., Katona, C. and Livingston, G. (2004). What causes problems in Alzheimer's disease: attributions by caregivers – a qualitative study. International Journal of Geriatric Psychiatry, 19, 527–532.
Ron, M. A., Toone, B. K., Garralda, M. E. and Lishman, W. A. (1979). Diagnostic accuracy in presenile dementia. British Journal of Psychiatry, 134, 161–168.
Sampson, E. L., Warren, J. D. and Rossor, M. N. (2004). Young onset dementia. Postgraduate Medical Journal, 80, 125–139.
Sperlinger, D. and Furst, M. (1994). The service experiences of people with presenile dementia: a study of carers in one London borough. International Journal of Geriatric Psychiatry, 9, 47–50.
van Vliet, D. et al. (2010a). Research protocol of the NeedYD-study (Needs in Young onset Dementia): a prospective cohort study on the needs and course of early onset dementia. BMC Geriatrics, 10, 13.
van Vliet, D., de Vugt, M. E., Bakker, C., Koopmans, R. T. and Verhey, F. R. (2010b). Impact of early onset dementia on caregivers: a review. International Journal of Geriatric Psychiatry, 25, 1091–100.
van Vliet, D. et al. (2010c) How do caregivers of early onset dementia patients perceive the period prior to diagnosis? Abstract Book of the International Meeting of the International Psychogeriatric Association (unpublished), Santiago de Compostela, 26–29 September 2010.
Werner, P., Stein-Shvachman, I. and Korczyn, A. D. (2009). Early onset dementia: clinical and social aspects. International Psychogeriatrics, 21, 631–636.
Williams, T., Cameron, I. and Deardon, T. (2001). From pillar to post: a study of younger people with dementia. Psychiatric Bulletin, 25, 384–387.