1.Hampton, M. L., Anderson, J., Lavizzo, B. S. and Bergman, A. B. (1974) Sickle cell “nondisease”. A potentially serious public health problem. Am. J. Dis. Child. 128, 58–61.
2.Marteau, T. M. (1994) Screening for carriers of cystic fibrosis: Psychological consequences are unclear. Brit. med. J. 309, 1429–1430.
3.Evers-Kiebooms, G., Denayer, L., Welkenhuysen, M., Cassiman, J. J. and van den Berghe, H. (1994) A stigmatizing effect of the carrier status for cystic fibrosis? Clin. Genet. 46, 336–343.
4.Koch, L. and Stemerding, D. (1994) The sociology of entrenchment: a cystic fibrosis test for everyone? Soc. Sci. Med. 39, 1211–1220.
5.Nature (1995) When is prenatal diagnosis “eugenics”? Nature 378, 549.
6. Royal College of Physicians Committees on Ethical Issues in Medicine and Clinical Genetics (1991) Ethical Issues in Clinical Genetics. Royal College of Physicians of London, London.
7.Nuffield Council on Bioethics (1993) Genetic Screening—Ethical Issues. Nuffield Council on Bioethics, London.
8.Boddington, P. (1994) Confidentiality in genetic counselling. In Genetic Counselling: Practice and Principles Chap 10, pp. 223–240. Clarke, A. (Ed). Routledge, London and New York.
9.Pokorski, R. J. (1995) Genetic information and life insurance. Nature 376L, 13–14.
10.Light, D. W. (1992) The practice and ethics of risk-related health insurance. JAMA 267, 2503–2508.
11.Harper, P. S. (1993) Insurance and genetic testing. Lancet 341, 224–227.
12.Nature (1996) Whose right to genetic knowledge? Nature 379, 379.
13.Harper, P. S. and Clarke, A. (1990) Should we test children for “adult” genetic disease? Lancet 335, 1205–1206.
14.Clinical Genetics Society Working Party (1994) The genetic testing of children. J. Med. Genet. 31, 785–797.
15.Clarke, A. and Flinter, F. (1996) The genetic testing of children: a clinical perspective. In The Troubled Helix: Social and Psychological Implications of the New Genetics Chap 7, pp. 164–176. Marteau, T. and Richards, M. (Eds). Cambridge, Cambridge University Press.
16.Michie, S. and Marteau, T. M. (1996) Predictive genetic testing in children: the need for psychological research. Brit. J. Health Psychol. 1, 3–14.
17.Chadwick, R. and Levitt, M. (1996) EUROSCREEN: ethical and philosophical issues of genetic screening in Europe. J. Roy. Coll. Phys. Lond. 30, 67–69.
18.Rozmahel, R., Wilschanski, M., Matin, A., Plyte, S., Oliver, M., Auerbach, , Moore, A., Forstner, J., Durie, P., Nadeau, J., Bear, C. and Tsui, L.-C. (1996) Modulation of disease severity in cystic fibrosis transmembrane conductance regulator deficient mice by a secondary genetic factor. Nature Genetics 12, 280–287.
19.Baird, P. A. (1990) Genetics and health care. Perspect. Biol. Med. 33, 203–213.
20.Clarke, A. (1995) Population screening for genetic susceptibility to disease. Brit. med. J. 311, 35–38.
21.Stott, N. C. H., Kinnersley, P. and Rollnick, S. (1994) The limits to health promotion (editorial). Brit. med. J. 309, 971–972.
22.Lefebvre, R. C., Hursey, K. G. and Carleton, R. A. (1988) Labeling of participants in high blood pressure screening programs: implications for blood cholesterol screenings. Arch. Int. Med. 148, 1993–1997.
23.Davison, C., Frankel, S. and Smith, G. D. (1992) The limits of lifestyle: re-assessing “fatalism” in the popular culture of illness prevention. Soc. Sci. Med. 34, 675–685.
24.Davison, C., Macintyre, S. and Smith, G. D. (1994) The potential social impact of predictive genetic testing for susceptibility to common chronic diseases: a review and proposed research agenda. Sociology of Health & Illness 16, 340–371.
25.Cloninger, C. R., Adolfsson, R. and Svrakic, N. M. (1996) Mapping genes for human personality. Nature Genetics 12, 3–4.
26.Harper, P. S. (1995) DNA markers associated with high versus low IQ: ethical considerations. Behavior Genetics 25, 197–198.
27.Chapple, J. C., Dale, R. and Evans, B. G. (1987) The new genetics: will it pay its way? Lancet i, 1189–1192.
28.Clarke, A. (1990) Genetics, ethics and audit. Lancet 335, 1145–1147.
29.Clarke, A. (1991) Is non-directive genetic counselling possible? Lancet 338, 998–1001.
30.Clarke, A., Parsons, E. and Williams, A. (1996) Outcomes and process in genetic counselling. Clinical Genetics (in press).
31.Alper, J. S. and Natowicz, M. R. (1992) The allure of genetic explanations. Scientists find them more attractive than social explanations. Brit. med. J. 305, 666.
32.Lippman, A. (1992) Led (astray) by genetic maps: the cartography of the human genome and health care. Soc. Sci. Med. 35, 1469–1476.
33.Harper, P. S. (1992) Genetics and public health. Brit. med. J. 304, 721.