AMR Research (2015) Carer service development research report. Canberra: Commonwealth of Australia.
Carers Victoria (2013) Invisible Care: Access to Carer Payment and Carer Allowance by Victorian Carers of a Person with a Mental Illness. Melbourne: Carers Association Victoria.
Cass, B, Smyth, C, Hill, T, Blaxland, M and Hamilton, M (2009) Young Carers in Australia: Understanding the Advantages and Disadvantages of their Care Giving. Canberra: Department of Families, Housing, Community Services and Indigenous Affairs.
Cleary, M, Freeman, A, Hunt, GE and Walter, G (2005) What patients and carers want to know: an exploration of information and resource needs in adult mental health services. Australian and New Zealand Journal of Psychiatry 39, 507–513.
Coker, F, Williams, A, Hayes, L, Hamann, J and Harvey, C (2016) Exploring the needs of diverse consumers experiencing mental illness and their families through family psychoeducation. Journal of Mental Health 25, 197–203.
Cummins, RA, Hughes, J, Tomyn, A, Gibson, A, Woerner, J and Lai, L (2007) The Wellbeing of Australians – Carer Health and Wellbeing. Geelong, Australia: Deakin University.
Edwards, B, Higgins, DJ, Gray, M, Zmijewski, N and Kingston, M (2008) The Nature and Impact of Caring for Family Members with a Disability in Australia. Canberra: Australian Institute of Family Studies.
Hammond, T, Weinberg, MK and Cummins, RA (2014) The dyadic interaction of relationships and disability type on informal carer subjective well-being. Quality of Life Research 23, 1535–1542.
Harmer, J (2008) Pension Review: Background Paper. Canberra: Department of Families, Housing, Community Services and Indigenous Affairs.
Harris, M, Diminic, S, Marshall, C, Stockings, E and Degenhardt, L (2015) Estimating service demand for respite care among informal carers of people with psychological disabilities in Australia. Australian and New Zealand Journal of Public Health 39, 284–292.
Hielscher, E, Diminic, S, Kealton, J, Harris, M, Lee, YY and Whiteford, H (2018) Hours of care and caring tasks performed by Australian carers of adults with mental illness: results from an online survey. Community Mental Health Journal, published online 23 February 2018, doi: 10.1007/s10597–018–0244-x.
Hill, T, Smyth, C, Thomson, C and Cass, B (2009) Young carers: their characteristics and geographical distribution. Report to the National Youth Affairs Research Scheme (NYARS). Canberra: Commonwealth of Australia.
Hunter Institute of Mental Health (2013) Supporting Those Who Care: Partners in Depression National Program Outcomes. Newcastle, Australia: Hunter Institute of Mental Health.
Jardim, C and Pakenham, KI (2009) Pilot investigation of the effectiveness of respite care for carers of an adult with mental illness. Clinical Psychologist 13, 87–93.
Jardim, C and Pakenham, KI (2010 a) Carers of adults with mental illness: comparison of respite care users and non-users. Australian Psychologist 45, 50–58.
Jardim, C and Pakenham, KI (2010 b) Carers’ views on respite care for adults with mental disorders. Advances in Mental Health 9, 84–97.
Jeon, YH, Chenoweth, L and McIntosh, H (2007) Factors influencing the use and provision of respite care services for older families of people with a severe mental illness. International Journal of Mental Health Nursing 16, 96–107.
Joint Standing Committee on the National Disability Insurance Scheme (2017) Provision of Services under the NDIS for People with Psychosocial Disabilities Related to a Mental Health Condition. Canberra: Commonwealth of Australia.
Kokanovic, R, Petersen, A and Klimidis, S (2006) ‘Nobody can help me… I am living through it alone’: experiences of caring for people diagnosed with mental illness in ethno-cultural and linguistic minority communities. Journal of Immigrant and Minority Health 8, 125–135.
Lawn, S and McMahon, J (2015) Experiences of family carers of people diagnosed with borderline personality disorder. Journal of Psychiatric and Mental Health Nursing 22, 234–243.
Loi, SM, Dow, B, Moore, K, Hill, K, Russell, M, Cyarto, E, Malta, S, Ames, D and Lautenschlager, NT (2015) The adverse mental health of carers: does the patient diagnosis play a role? Maturitas 82, 134–138.
Mackay, C and Pakenham, KI (2012) A stress and coping model of adjustment to caring for an adult with mental illness. Community Mental Health Journal 48, 450–462.
McAullife, D, Andriske, L, Moller, E, O'Brien, M, Breslin, P and Hickey, P (2009) ‘Who cares?’ An exploratory study of carer needs in adult mental health. Australian e-Journal for the Advancement of Mental Health 8, 1–12.
McMahon, J, Hardy, J and Carson, R (2010) Identifying the carer project: final report and recommendations. Adelaide, Australia: Private Mental Health Consumer Carer Network.
Mental Health Council of Australia (2010) Mental Health Carers Report 2010. Canberra: MHCA.
Mental Health Council of Australia (2011) Consumer and Carer Experiences of Stigma from Mental Health and Other Health Professionals. Canberra: MHCA.
Mental Health Council of Australia (2012) Recognition and respect: mental health carers report 2012. Canberra: MHCA.
Mental Health Council of Australia and Carers Association of Australia (2000) Carers of people with mental illness project: final report. Canberra: MHCA.
Merikangas, KR, Nakamura, EF and Kessler, RC (2009) Epidemiology of mental disorders in children and adolescents. Dialogues in Clinical Neuroscience 11, 7–20.
National Mental Health Commission (2014) Contributing lives, thriving communities: report of the national review of mental health programmes and services. Sydney: NMHC.
Pirkis, J, Burgess, P, Hardy, J, Harris, M, Slade, T and Johnston, A (2010) Who cares? A profile of people who care for relatives with a mental disorder. Australian and New Zealand Journal of Psychiatry 44, 929–937.
Poon, AWC, Harvey, C, Mackinnon, A and Joubert, L (2017) A longitudinal population-based study of carers of people with psychosis. Epidemiology and Psychiatric Sciences 26, 265–275.
Poon, AWC, Joubert, L and Harvey, C (2018) Perceived needs of carers of people with psychosis: an Australian longitudinal population-based study of caregivers of people with psychotic disorders. Health and Social Care in the Community 26(3), 412–422, published online 15 December 2017, doi: 10.1111/hsc.12530.
Smith-Merry, J, Hancock, N, Bresnan, A, Yen, I, Gilroy, J and Llewellyn, G (2018) Mind the Gap: the national disability insurance scheme and psychosocial disability. Final Report: stakeholder identified gaps and solutions. Sydney: The University of Sydney.
StataCorp (2009) Stata statistical software: release 11. StataCorp LP: College Station, TX.
Vecchio, N, Stevens, S and Cybinski, P (2008) Caring for people with a mental disability at home: Australian carers’ perceptions of service provision. Community Mental Health Journal 44, 125–134.
Vecchio, N, Cybinski, P and Stevens, S (2009) The effect of disability on the needs of caregivers. International Journal of Social Economics 36, 782–796.
Yesufu-Udechuku, A, Harrison, B, Mayo-Wilson, E, Young, N, Woodhams, P, Shiers, D, Kuipers, E and Kendall, T (2015) Interventions to improve the experience of caring for people with severe mental illness: systematic review and meta-analysis. British Journal of Psychiatry 206, 268–274.