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Social media in paediatric heart disease: professional use and opportunities to improve cardiac care*

  • Kurt R. Schumacher (a1), Joyce M. Lee (a2) (a3) and Sara K. Pasquali (a1)

Abstract

Social media is any type of communication utilising electronic technology that follows two guiding principles: free publishing or sharing of content and ideas and group collaboration and inter-connectedness. Over the last 10 years, social media technology has made tremendous inroads into all facets of communication. Modalities such as Facebook, YouTube, and Twitter are no longer viewed as new communication technologies. Owing to their tremendous usage, they are now common ways to conduct a dialogue with individuals and groups. Greater than 91% of teenagers and 89% of young adults routinely use social media. Further, 24% of teenagers reported being online “almost constantly”. These forms of communication are readily used by individuals cared for in the field of paediatric cardiology; thus, they should carry significant interest for cardiology care providers; however, social media’s influence on medicine extends beyond use by patients. It directly affects all medical providers, both users and non-users. Further, social media has the ability to improve care for patients with paediatric heart disease. This article details social media’s current influence on paediatric cardiology, including considerations for professional use of social media and potential opportunities to improve cardiac care.

Copyright

Corresponding author

Correspondence to: K. R. Schumacher, MD, MS, Department of Pediatrics, University of Michigan Medical School, University of Michigan Congenital Heart Center, C.S. Mott Children’s Hospital, 1540 East Hospital Drive, Ann Arbor, MI 48109-4204, United States of America. Tel: 734 615 2369; Fax: 734 936 9470; E-mail: kurts@med.umich.edu

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*

Presented at the Children’s Hospital of Philadelphia Cardiology 2015: 18th Annual Update on Pediatric and Congenital Cardiovascular Disease: “Challenges and Dilemmas”, Scottsdale, Arizona, United States of America, Wednesday February 11, 2015 – Sunday, February 15, 2015.

Footnotes

References

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1. Leinhart, Amanda. Teens, social media & technology overview, 2015. Retrieved June 11, 2015, from http://www.pewinternet.org/2015/04/09/teens-social-media-technology-2015/
2.Gao, GG, McCullough, JS, Agarwal, R, Jha, AK. A changing landscape of physician quality reporting: analysis of patients’ online ratings of their physicians over a 5-year period. J Med Internet Res 2012; 14: e38.
3.Grabner-Krauter, S, Waiguny, MK. Insights into the impact of online physician reviews on patients’ decision making: Randomized experiment. J Med Internet Res 2015; 17: e93.
4.Langenfeld, SJ, Cook, G, Sudbeck, C, Luers, T, Schenarts, PJ. An assessment of unprofessional behavior among surgical residents on facebook: a warning of the dangers of social media. J Surg Educ 2014; 71: e28e32.
5. American Medical Association Code of Ethics. Opinion 9e.124 – professionalism in the use of social media, 2011. Retrieved June 11, 2015, from http://www.ama-assn.org/ama/pub/physician-resources/medical-ethics/code-medical-ethics/opinion9124.page?
6.Farnan, JM, Snyder Sulmasy, L, Worster, BK, Chaudhry, HJ, Rhyne, JA, Arora, VM. Online medical professionalism: patient and public relationships: policy statement from the american college of physicians and the federation of state medical boards. Ann Intern Med 2013; 158: 620627.
7.McKeon, M. The evolution of privacy of Facebook. 2010. Retrieved June 11, 2015, from http://mattmckeon.com/facebook-privacy/
8.DeCamp, M, Koenig, TW, Chisolm, MS. Social media and physicians’ online identity crisis. JAMA 2013; 310: 581582.
9.Wells, DM, Lehavot, K, Isaac, ML. Sounding off on social media: the ethics of patient storytelling in the modern era. Acad Med 2015; 90(8): 10151019.
10.Herrin, B, Ingram, T. Phi faux pas: social media and the unauthorized disclosure of phi. J Med Pract Manage 2012; 27: 275276.
11. Vartabedian, Bryan. Should doctors friend patients on Facebook? – 33 charts, 2012. Retrieved June 11, 2015, from http://33charts.com/2012/12/doctors-friend-patients-facebook.html
12. Crane, Kristine. Should you ‘friend’ your doctor?, 2014. Retrieved June 11, 2015, from http://health.usnews.com/health-news/patient-advice/articles/2014/05/22/should-you-friend-your-doctor
13.Baptist, AP, Thompson, M, Grossman, KS, Mohammed, L, Sy, A, Sanders, GM. Social media, text messaging, and email-preferences of asthma patients between 12 and 40 years old. J Asthma 2011; 48: 824830.
14.Barmash, M. The congenital heart information network, 2015. Retrieved June 11, 2015, from http://www.tchin.org/
15.Majumder, MS, Cohn, EL, Mekaru, SR, Huston, JE, Brownstein, JS. Substandard vaccination compliance and the 2015 measles outbreak. JAMA Pediatr 2015; 169: 494495.
16.Willnat, L, Weaver, D. The American journalist in the digital age, 2014. Retrieved June 12, 2015, from http://news.indiana.edu/releases/iu/2014/05/2013-american-journalist-key-findings.pdf
17.Fox, CS, Bonaca, MA, Ryan, JJ, Massaro, JM, Barry, K, Loscalzo, J. A randomized trial of social media from circulation. Circulation 2015; 131: 2833.
18.Wicks, P, Vaughan, TE, Massagli, MP, Heywood, J. Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm. Nat Biotechnol 2011; 29: 411414.
19.Schumacher, KR, Stringer, KA, Donohue, JE, et al. Fontan-associated protein-losing enteropathy and plastic bronchitis. J Pediatr. 2015 Apr; 166(4): 970977.
20.Schumacher, KR, Singh, TP, Kuebler, J, Aprile, K, O’Brien, M, Blume, ED. Risk factors and outcome of fontan-associated plastic bronchitis: a case-control study. J Am Heart Assoc 2014; 3: e000865.
21.Mertens, L, Hagler, DJ, Sauer, U, Somerville, J, Gewillig, M. Protein-losing enteropathy after the fontan operation: an international multicenter study. Ple study group. J Thorac Cardiovasc Surg 1998; 115: 10631073.
22.Schumacher, KR, Stringer, KA, Donohue, JE, et al. Social media methods for studying rare diseases. Pediatrics. 2014 May; 133(5): e1345e1353.
23. Glotzbach, Kristi. Improving quality of life for children and families living with cardiomyopathy, 2015. Retrieved June 11, 2015, from http://www.einstein.yu.edu/research/studies/pediatric-cardiomyopathy/

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