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Cardiac Networks United: an integrated paediatric and congenital cardiovascular research and improvement network

  • Michael Gaies (a1), Jeffrey Anderson (a2) (a3), Alaina Kipps (a4), Angela Lorts (a2), Nicolas Madsen (a2), Bradley Marino (a5), John M. Costello (a6), David Brown (a7), Jeffrey P. Jacobs (a8), David Kasnic (a9), Stacey Lihn (a10), Carole Lannon (a3), Peter Margolis (a3), Gail D. Pearson (a11), Jonathan Kaltman (a11), John R. Charpie (a1), Andrew N. Redington (a2), Sara K. Pasquali (a1) and on behalf of the Cardiac Networks United Executive Committee and Advisory Board (a1) (a2) (a3) (a4) (a5) (a6) (a7) (a8) (a9) (a10) (a11)...

Abstract

Optimising short- and long-term outcomes for children and patients with CHD depends on continued scientific discovery and translation to clinical improvements in a coordinated effort by multiple stakeholders. Several challenges remain for clinicians, researchers, administrators, patients, and families seeking continuous scientific and clinical advancements in the field. We describe a new integrated research and improvement network – Cardiac Networks United – that seeks to build upon the experience and success achieved to-date to create a new infrastructure for research and quality improvement that will serve the needs of the paediatric and congenital heart community in the future. Existing gaps in data integration and barriers to improvement are described, along with the mission and vision, organisational structure, and early objectives of Cardiac Networks United. Finally, representatives of key stakeholder groups – heart centre executives, research leaders, learning health system experts, and parent advocates – offer their perspectives on the need for this new collaborative effort.

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Corresponding author

Author for correspondence: M. Gaies, MD, MPH MSc, Congenital Heart Center, University of Michigan C.S. Mott Children’s Hospital, 1540 E. Hospital Drive, Ann Arbor, MI 48109-4204, USA. Tel: +734-936-3770; E-mail: mgaies@med.umich.edu

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Drs Gaies and Anderson should be listed as co-first authors.

Cite this article: Gaies M, Anderson J, Kipps A, Lorts A, Madsen N, Marino B, Costello JM, Brown D, Jacobs JP, Kasnic D, Lihn S, Lannon C, Margolis P, Pearson GD, Kaltman J, Charpie JR, Redington AN, Pasquali SK, on behalf of the Cardiac Networks United Executive Committee and Advisory Board. (2018) Cardiac Networks United: an integrated paediatric and congenital cardiovascular research and improvement network. Cardiology in the Young page 111 of 118. doi: 10.1017/S1047951118001683

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References

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