Hostname: page-component-8448b6f56d-wq2xx Total loading time: 0 Render date: 2024-04-24T20:12:32.114Z Has data issue: false hasContentIssue false
  • English
  • Français

Genethics: “Planned Parenthood”

Published online by Cambridge University Press:  03 August 2009

Charles R. MacKay ,
Ronald M. Green ,
Wendy J. Fibison  and
Mark R. Hughes
Charles R. MacKay
Affiliation:
Employed at the National Institutes of Health and has published widely in the areas of bioethics, research ethics, and genetics.
Ronald M. Green
Affiliation:
Director of the Office of Genome Ethics of the National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland. He is also the Director of the Ethics Institute at Dartmouth College, Hanover, New Hampshire.
Wendy J. Fibison
Affiliation:
A fellow National Human Genome Research Institute and National Institute of Nursing Research, National Institutes of Health, Bethesda, Maryland.
Mark R. Hughes
Affiliation:
Professor of ObGyn, Pediatrics, and Pathology, and Director of the Institute for Molecular and Human Genetics, Georgetown University Medical Center, Washington, D.C.
Get access Rights & Permissions [Opens in a new window]

Extract

This case is another in a series intended to highlight the new questions emerging from advances in mapping the human genome and the application of genetic findings to clinical practice. The National Human Genome Research Institute, a component of the National Institutes of Health, by law is directed to designate a portion of its annual budget to furthering understanding of the ethical, legal, and social questions emerging from research on the human genome. As part of the effort, the Institute supports research by scientists and scholars around the nation with the aim of clarifying and resolving the tough ethical and research choices facing this endeavor. But recently it has launched an intramural program, which is expected to take a catalytic role in grappling with the array of issues the researchers face in carrying out investigations in human genetics.

Type
Departments and Columns
Information
Cambridge Quarterly of Healthcare Ethics , Volume 6 , Issue 1 , Winter 1997 , pp. 100 - 105
Copyright
Copyright © Cambridge University Press 1997

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Notes

* There is no connection between the research or clinical work mentioned in this case and the National Institutes of Health or Georgetown University.

1. Clark, RD, Fletcher, JC, Petersen, G. Conceiving a child for bone marrow donation: an ethical problem in prenatal diagnosis. Prenatal Diagnosis 1989;9:329–34.CrossRefGoogle ScholarPubMed

2. Auerbach, AD. Umbilical cord blood transplants for genetic disease: diagnostic and ethical issues in fetal studies. Blood Cells 1994;20:303–9.Google ScholarPubMed

3. See note 1. Clark, , Fletcher, , Petersen, . 1989: 332–3.Google Scholar

4. U.S. Congress, Office of Technology Assessment. Background paper: public perceptions of biotechnology. New Developments in Biotechnology. Washington, D.C.: U.S. Government Printing Office 1987. OTA,-BP-BA-45.Google ScholarPubMed

5. President's Commission for the Study of Ethical Problems in Medicine and Biomedical Research. Screening and Counseling for Genetic Conditions. Washington, D.C.: U.S. Government Printing Office, 1983:75–81.Google ScholarPubMed

6. See note 1. Clark, , Fletcher, , Petersen, . 1989:332–3.Google Scholar

7. Alby, N. The child conceived to give life. Bone Marrow Transplantation: Proceedings of the Symposium on Fetal and Neonatal Cell Transplantation and Retroviral Gene Therapy 1992;9(Suppl 1): 95–6.Google Scholar

8. Lo, PC. Treating Persons as Ends: An Essay on Kant's Moral Philosophy. Lanham, New York: University Press of America, 1987.Google Scholar

9. Korsgaard, CM. Kant's formula of humanity. Kant-Studien 1986;77(2):183–202.CrossRefGoogle Scholar

10. Curran, WJ. A problem of consent: kidney transplantation in minors. New York University Law Review 1959;34:891–905.Google Scholar

11. Holtug, N. Human gene therapy: down the slippery slope? Bioethics 1993;7:402–19.CrossRefGoogle Scholar

12. Gardner, W. Can human genetic enhancement be prohibited? Journal of Medicine and Philosophy 1995;20:65–84.CrossRefGoogle ScholarPubMed

13. We owe this point to Dr. Marian Secundy.

14. International Huntington Association and the World Federation of Neurology. Ethical issues policy statement on Huntington's disease molecular genetics predictive test. Journal of Medical Genetics 1990;27:34–8.CrossRefGoogle ScholarPubMed

15. UK Clinical Genetics Society. The genetic testing of children. Journal of Medical Genetics 1994;31:785–97;Google ScholarPubMedWertz, DC, Fanos, JH, Reilly, PM. Genetic testing for children and adolescents: who decides? JAMA 1994;272:875–81.CrossRefGoogle ScholarPubMed

16. Markel, D. Prenatal and childhood testing for adult-onset genetic disorders. Perspectives in Genetic Counseling 1994/1995;16(4):1,6.Google Scholar

17. Wertz, DC, Fletcher, JC. Fatal knowledge: prenatal diagnosis and sex selection. Hastings Center Report 1989;19(3):21–27.CrossRefGoogle ScholarPubMed

18. Thomasma, DC. Beyond medical paternalism and patient autonomy: a model of physician conscience for the physician-patient relationship. Annals of Internal Medicine 1983;98:243–8.CrossRefGoogle ScholarPubMed