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Individuals' experiences of involuntary admissions and preserving control: qualitative study

Published online by Cambridge University Press:  16 November 2018

David McGuinness
Affiliation:
Research Nurse, School of Nursing and Midwifery, National University of Ireland, Ireland
Kathy Murphy
Affiliation:
Professor of Nursing, School of Nursing and Midwifery, National University of Ireland, Ireland
Emma Bainbridge
Affiliation:
Honorary Clinical Fellow, School of Medicine, National University of Ireland, Ireland
Liz Brosnan
Affiliation:
Survivor Researcher and Consultant, Centre for Disability Law and Policy, National University of Ireland, Ireland
Mary Keys
Affiliation:
Former Lecturer in Law, School of Law, National University of Ireland, Ireland
Heike Felzmann
Affiliation:
Lecturer in Philosophy/Ethics, Centre of Bioethical Research and Analysis, National University of Ireland, Ireland
Brian Hallahan
Affiliation:
Senior Lecturer in Psychiatry, School of Medicine, National University of Ireland, Ireland
Colm McDonald
Affiliation:
Professor of Psychiatry, School of Medicine, National University of Ireland, Ireland
Agnes Higgins*
Affiliation:
Professor in Mental Health, School of Nursing and Midwifery, Trinity College, University of Dublin,Ireland
*
Correspondence: Professor Agnes Higgins, School of Nursing and Midwifery, Trinity College Dublin, University of Dublin, 24 D'Olier Street, Dublin D02 T283, Ireland. Email: ahiggins@tcd.ie
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Abstract

Background

A theoretical model of individuals' experiences before, during and after involuntary admission has not yet been established.

Aims

To develop an understanding of individuals' experiences over the course of the involuntary admission process.

Method

Fifty individuals were recruited through purposive and theoretical sampling and interviewed 3 months after their involuntary admission. Analyses were conducted using a Straussian grounded theory approach.

Results

The ‘theory of preserving control’ (ToPC) emerged from individuals' accounts of how they adapted to the experience of involuntary admission. The ToPC explains how individuals manage to reclaim control over their emotional, personal and social lives and consists of three categories: ‘losing control’, ‘regaining control’ and ‘maintaining control’, and a number of related subcategories.

Conclusions

Involuntary admission triggers a multifaceted process of control preservation. Clinicians need to develop therapeutic approaches that enable individuals to regain and maintain control over the course of their involuntary admission.

Declaration of interest

None.

Type
Papers
Creative Commons
Creative Common License - CCCreative Common License - BYCreative Common License - NCCreative Common License - ND
This is an Open Access article, distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives licence (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is unaltered and is properly cited. The written permission of Cambridge University Press must be obtained for commercial re-use or in order to create a derivative work.
Copyright
Copyright © The Royal College of Psychiatrists 2018

In the Republic of Ireland, the Mental Health Act 2001,1 updated the legislative framework within which an individual could be admitted, detained and treated involuntarily. To date, few grounded theory studies have been conducted that have explored individuals' experiences while admitted involuntarily to hospital. Loft and Lavender in their grounded theory study explored the experiences of individuals with psychosis admitted to hospital involuntarily and it included 8 patients (aged 18–65 years) and 9 consultant psychiatrists.Reference Loft and Lavender2 Seed and colleagues explored the experience of 12 patients diagnosed with anorexia nervosa (aged 18–55 years) admitted involuntarily to a private in-patient facility.Reference Seed, Fox and Berry3 These studies highlighted the initial distress experienced by individuals on admission,Reference Loft and Lavender2 how this distress had an impact on their relationship with clinicians,Reference Seed, Fox and Berry3 how individuals' opinions change about their management during their hospital admissionReference Seed, Fox and Berry3 and the relief experienced by individuals at the prospect of discharge.Reference Loft and Lavender2 However, both these studies included modest numbers of participants, primarily focused on individuals' experiences during their admission to hospital, and included individuals with a relatively narrow age range. Consequently, grounded theory studies to date have not examined a large number of individuals in a range of diagnoses and sociodemographic diversity. This present study aims to address these issues by developing a theoretical model to understand individuals' experiences over the course of an involuntary admission.

Method

Research design

Grounded theory was considered the most appropriate methodology because it focuses on developing theory and enables a theoretical understanding of individuals' experiences, before, during and after involuntary admission. Specific attention was given to choosing a version of grounded theory that would prompt the researcher to understand the processes behind individuals' experiences, as well as what was self-reported by the individual. The Straussian version is derived from a constructivist paradigm and uses analytical strategies (such as the coding paradigm), which places an emphasis on the wider context, enabling the researcher to explore if contextual factors influenced experiences.Reference Strauss and Corbin4, Reference Strauss and Corbin5 For this reason, it was a good fit for this study as it assisted the exploration of theoretical perspectives and enabled understanding of the psychological and social processes that contribute to individuals' experiences and their reactions.

Recruitment

A total of 50 individuals, who had been subject to involuntary admissions under the Mental Health Act 2001 and who fulfilled the inclusion criteria (not currently in-patients, no cognitive impairment, able to provide informed written consent for study participation approximately 3 months after termination of their involuntary admission), were recruited from a larger cohort of 156 individuals who agreed to participate and completed follow-up assessments (263 individuals completed the baseline assessments in the follow-up arm of a quantitative prospective study of attitudes towards admission and care in three different in-patient units.Reference Murphy, McGuinness, Bainbridge, Brosnan, Felzmann and Keys6, Reference Bainbridge, Hallahan, McGuinness, Gunning, Keys and Felzmann7 Recruitment to both the quantitative arm of the large study and this grounded theory arm commenced in 2011.

As there was no evolving theory to direct the initial sampling, data collection started with four individuals who met the above inclusion criteria. All four individuals who were contacted 3 months post discharge agreed to be interviewed. These interviews were then analysed prior to subsequent recruitment. This initial analysis also identified areas within the topic guide to be explored in greater depth. Subsequently, recruitment was phased in line with the tenets of grounded theory and theoretical sampling, and involved the concurrent process of recruitment, interviewing and analysis of data from a further 46 more individuals. Although 50 individuals may seem a high number for qualitative research, it is not unusual in grounded theory because large samples are required to ensure maximum variability and a robust theory.

Theoretical sampling

Theoretical sampling was driven by the need to advance the theory, clarify emerging concepts and for comparative purposes ensure that a diversity of individuals with potentially different perspectives and experiences were interviewed. To explore if different contextual factors influenced individuals’ perspectives, people with different sociodemographic and clinical profiles were purposively selected for interview. Individuals with specific characteristics related to age, diagnosis and number of times detained under the act were recruited over the course of the study. As the initial sample included only those between 23 and 65 years of age, two individuals over 80 were specifically recruited as well as individuals who had involuntary admission initiated from within the approved centre and individuals who had their application for involuntary admission made by a family member. In addition, to expand the range of DSM-IV diagnosis,8 one individual with a diagnosis of anorexia nervosa was recruited and an individual who had their involuntary admission order revoked at tribunal was interviewed. Theoretical sampling also assisted in the exploration of tentative concepts or the development of theoretical concepts that were not well developed.Reference Elliott and Lazenbatt9 For example, concepts such as: ‘frustration’, and ‘resisting’ emerged early in the study. Thus, in further interviews these concepts were explored. In addition, theoretical sampling also consisted of revisiting the previously collected and analysed data to test out assumptions and check that the emerging patterns were also evident in previous interviews. (see Table 1 for the profile of participants sampled).

Table 1 Sociodemographic and clinical data

a. Two individuals had no diagnosis and the diagnosis for one was classed as ‘other’ because of the fact that consent to medical notes was declined.

Data collection

Data were collected by means of semi-structured audio-recorded interviews by the researcher (D.M.G.) and were transcribed verbatim. Contextual data pertaining to the approved centres were also collected, for example a general description of the environment and therapeutic activities available. The researcher was not involved in the clinical care of any study participants. Interviews took place between the years 2011 and 2013, in out-patients, day centres, individuals' homes, in hotels and one was over Skype.

Interviews were conducted using one of two topic guides. The first topic guide was developed through discussions with the research team using their expertise (self-experience of mental health issues, bioethics, law, psychiatry, psychiatric nursing). It was then refined by the researcher and two experienced qualitative researchers with experience in grounded theory (K.M. and A.H.), one of whom (A.H.) had experience in mental health. The guide was piloted with two individuals to test its ability to generate data of sufficient quality and depth. Following the pilot, the topic guide was revised and used to interview 34 individuals. Using the following introductory open-ended question: ‘With regard to your recent admission, can you tell me what happened to cause you to be admitted to hospital in your own time and in your own words?’, the focus of the guide was to enable each person to share their experiences. Once interviewees began discussing their experiences, follow-up questions were asked, such as: ‘What was it like for you coming to hospital?’; ‘What was it like for you when you first arrived at the hospital?’; ‘What was your stay in hospital like?’; and ‘What was it like immediately after hospital?’.

Later, derived through data analysis, a second more focused topic guide was developed. This consisted of a stock of new questions to assist with elaborating concepts and categories and thus concentrated on further development of the emerging theory. The aim of this phase of data collection was to refine, saturate and integrate categories, in order to identify the core category. In this phase 16 individuals were interviewed. The format of the second topic guide incorporated the same introductory open-ended question, but follow-up questions were more focused on exploring emerging concepts and categories. For example, some concepts such as ‘not wanting help in hospital’ and ‘playing ball’ were probed in-depth. The researcher at this stage acted both flexibly and strategically, allowing the person to recount their experience in whatever sequence they wished, while also asking focused questions on the developing theory. Interviews lasted 8–95 min with a mean length of 47 min. No participant refused to participate in the interviews, although one individual chose not to be audio-recorded, and field notes were recorded instead.

Data analysis

In line with grounded theory a concurrent process of data collection and data analysisReference Strauss and Corbin5 took place, wherein data were continuously analysed throughout data collection. Three forms of coding were employed (open, axial and selective coding). The first phase of analysis involved open coding the transcript, which involved naming meaningful units of data using a conceptual concept or code. Using comparative analysis, open codes were compared within an individual interview and across interviews for similarities and differences and where relevant collapsed into higher order codes. Following this process, the 345 open codes developed were reduced to 44 higher order codes, which were then integrated and organised into categories. This phase of analysis resulted in preliminary categories that was then used as a framework to guide further data collection and analysis. Using axial coding and constant comparison, subsequent interviews were compared and coded using the emerging framework. If the new data did not fit the coding framework, or if it required a different title to explain its meaning, then a new code or subcategory was created. In order to link subcategories to categories, data was continually compared and interrogated within and between categories. When ‘preserving control’ emerged as the core category with the most explanatory power for the psychosocial process experienced by the participants interviewed, further analysis was completed, through selective coding of all subsequent interviews. Selective coding enabled the development and integration of all the categories within the theory. Interviewing and analysis continued until theoretical saturation of the theory was complete: in that, no new patterns or categories were emerging and linkages between concepts and categories were explicit, well developed and verified through the constant comparative process.Reference Glaser10

Some codes that emerged early, such as ‘unnecessary paperwork’ did not earn their way into the theory. Although data analysis is presented in a linear fashion and although the computer-assisted qualitative data analysis software NVivo; (Version 10) was used to assist with data storage and management, the analysis was an iterative process that involved mind mapping, memo writing and discussion with others. The researcher (D.McG.) conducted the preliminary analysis and in order to ensure rigour, two experienced qualitative researchers (K.M. and A.H.), with expertise in grounded theory and qualitative research, reviewed the data and discussed the emerging subcategories and categories. In addition, the emerging theory and supporting data were presented on a continuous basis to the wider research team.

Ethical considerations

Ethical approval for the study was obtained from the local hospitals and the National University of Ireland Galway research ethics committees. Participants were informed about the grounded theory part of the study through information sheets and posters and if they expressed interest they were contacted by the researcher (D.McG.) who sought consent. Individuals provided written informed consent for interview and for their clinical notes to be accessed. One individual declined to provide consent to access their clinical notes; therefore, some sociodemographic and clinical data relating to this individual was not available.

Results

As an outcome of the data analysis process conducted by the researchers, the ‘theory of preserving control’ (ToPC) emerged (Fig. 1). The ToPC consists of three categories: ‘losing control’, ‘regaining control’ and ‘maintaining control’ and was developed to explain the relationship between the categories. The theory describes the extent of loss of control participants experienced when subject to involuntary admission and the ways in which they managed to regain control over their emotional, personal and social lives through the process of preserving control. As the diagram suggests although all participants advanced through the three stages and arrived at the position of ‘maintaining control’, the theory also acknowledges the potential for participants to re-enter the losing control phase, should their mental health deteriorate.

A diagrammatic view of the categories and subcategories of the theory of preserving control. The arrows indicate the direction of progress though the phases with the broken arrow indicating the potential to re-enter the cycle.

Fig. 1 The theory of preserving control.

Although all individuals experienced a loss of control some experienced a greater loss than others and consequently progressed at differing rates, depending on context. The way(s) in which individuals regained control similarly varied. Some individuals with previous experience of involuntary admission adopted the strategy of ‘playing ball’ much earlier in the process. Additionally, others with no experience of involuntary admission initially adopted a ‘resisting the system’ strategy. Selected participant quotes are provided within the text; however, the Appendix includes a wider range of quotes that support the categories and subcategories identified.

Category 1: ‘losing control’

The first category ‘losing control’ refers to the extent of loss of autonomy individuals experienced as a result of varying levels of mental distress and the extent individuals felt coerced during involuntary admission and subsequent hospital stay. Losing control arose as a result of internal and external pressures on an individual's capacity to control their own life. ‘losing control’ comprised of three subcategories, ‘diminishing self-mastery’, ‘feeling violated’ and ‘being confined’.

Subcategory 1.1: ‘diminishing self-mastery’

This described individuals' retrospective experiences of their becoming unwell, which resulted in them having difficulties in regulating their emotional and social lives. People spoke of changes in their emotions, feeling different and experiencing strange thoughts. Whereas some individuals were clear as to the cause: ‘I started taking drugs. I became paranoid … Everyone knew my business and I couldn't do anything without people talking about me … I felt like everybody … was making a laugh of me’ (participant 25, man), other individuals struggled to make sense of their experience: ‘I didn't really understand what I was going through’ (participant 11, woman).

Subcategory 1.2: ‘feeling violated’

This referred to individuals' experiences of others involvement in the initiation and activation of the involuntary admission procedures and/or their removal to hospital. As participants began to have trouble regulating their lives, others took control, which participants described as not only engendering fear, but was an utter infringement into their lives. ‘I was taken from my place of work against my will … I was very annoyed and furious … I was taken out of my surroundings … Without being explained to me why and … that a GP [general practitioner] could turn around and do something like that and then go off about his business as if nothing happened …’ (participant 50, man). Many experienced coercive interactions with professionals and described feeling frightened as they did not know where they were going: ‘… they [assisted admission team] just dragged me … They put me against the floor, used violence … they handcuffed me and they put me in this plastic yellow blanket and put me in a van or something … I didn't know where I was going.’ (participant 40, woman). When this happened in the presence of neighbours or the public, individuals articulated a consequential sense of embarrassment. Additionally, individuals felt betrayed when they perceived family members may have been involved in initiating their involuntary admission. As a direct consequence, of ‘feeling violated’ peoples' sense of loss of control was further exacerbated.

Subcategory 1.3: ‘being confined’

This was associated with the physical restrictiveness and coercion experienced while in hospital. Individuals described feeling deprived and scared as a result of their loss of liberty and freedom: ‘They [staff] wouldn't let you out in case you ran off … and not being allowed to get out and have fresh air was a major factor to me … I felt restricted … If you think you're in a prison, you're not going to get much better.’ (participant 4, woman); ‘I was trapped, I was locked up …’ (participant 9, man). In addition, many felt coerced into accepting treatment(s) they may not have wanted or perceived they required, with some thus describing being frustrated and badly treated.

Category 2: ‘regaining control’

The second category ‘regaining control’ refers to the manner in which individual's endeavoured to regain control of their autonomy. How control was reclaimed varied; some individuals regained some control when they were supported and facilitated to be involved and make sense of their mental distress, and others adopted self-devised strategies to minimise restriction and coercion. ‘regaining control’ comprises four subcategories: ‘resisting the system’, ‘encountering humanising care’, ‘gaining perspective’ and ‘playing ball’.

Subcategory 2.1: ‘resisting the system’

This describes how some individuals engaged in confrontation with professionals in order assert their autonomy. Individuals verbally asserted themselves; physically protesting and not complying with professionals' directions: ‘I was trying to break free … I was so shocked and angry … I was like shouting and all that’ (participant 33, woman). These strategies were typically associated with those individuals who had no prior experience of involuntary admission. Individuals expressed the view that the focus of their care was predominantly pharmacotherapeutic in nature.

Subcategory 2.2: ‘encountering humanising care’

This describes how participants began to regain control through positive and supportive interactions with people who were in control (for example police and clinicians) and who were willing to take a risk and giving participants some agency and control, despite their legal status. For example, being provided with choice and options such as being allowing to decide on the means of transport to hospital was viewed by participants as an opportunity to regain some control over their situation. ‘I had my car with me … He [Police man] … had me follow him, so he was actually trusting me … the independence … the trust … that was important (participant 38, man)’; Similarly, being listened to, asked for an opinion, or having clinicians that saw the person as opposed to the patient enabled some participants to feel a sense of control and agency over certain aspects of the process of involuntary admission: ‘He [psychiatrist] was very nice … He asked me … how I felt … what brought you here?’ (participant 9, man).

Subcategory 2.3: ‘gaining perspective’

This describes how being provided with treatment approaches (medication and therapeutic relationships), helped people feel calm and think more clearly, make sense of and reappraise what was happening to them: ‘She [nurse] was talking to me as though she believed what was going on in my thoughts … she understood where I was coming from … asking me questions that were trying to make me think introspectively’ (participant 38, man). ‘… when I was in [names hospital] I really sort of faced up to my issues … I think I had a lot of built-up anger, resentment, regrets and other things that had been below the surface for many years and I hadn't sort of dealt with things … I think part of me has always wanted to understand … what's going on … now I understand more about myself …’ (participant 11, woman). As some individuals began to understand and gain perspective they relinquished control to benevolent others (clinicians) as they came to put confidence and trust in a professional they perceived as caring and competent.

Subcategory 2.4: ‘playing ball’

This refers to other strategies adopted by some individuals to limit the extent of coercion exerted upon them. Such individuals saw no benefit from being involuntarily admitted and deliberately monitored what they said to professionals, did not disagree or ask questions of professionals. They conformed to the system by reluctantly agreeing to comply with professionals and treatment, as one participant commented ‘you learn keep your head down, say nothing’ (participant 39, woman).

Category 3: ‘maintaining control’

The third and final category ‘maintaining control’ describes individuals' endeavours to live with the consequences of involuntary admission while managing their readjustment to family, work and wider society following discharge. Individuals not only had to maintain control over their emotional, personal and social lives but they also had to manage, deal and live with the stigma and other people's perception of them.

For some individuals the involuntary admission had a significant impact on their well-being and relationship with others. Some described feeling traumatised by the process ‘When I went to the psychiatrist after 3 months … I said look, I want to go and talk to someone myself … to help you with the post-traumatic stress of being in the hospital in the first place.’ (participant 45, woman). Being involuntarily admitted also had an impact on relationships with family, irrespective of who signed the application for admission. Additionally, some individuals described an ongoing threat of readmission and spoke of feeling under continuous surveillance from both professionals and their families. ‘… it made me aware of how vulnerable I am the system that's there … it's very controlling’ (participant 44, woman). In an attempt to ‘maintain[ing] control’ participants engaged in two strategies conceptualised as ‘managing mental health’ and ‘preserving sense of self’. However, returning home was more daunting than envisaged and consequently, many individuals maintained control only tentatively and lived with the constant fear of once again losing control.

Subcategory 3.1: ‘managing mental health’

This describes the strategies employed by individuals to manage their mental well-being. To minimise the risk of re-entering the cycle of losing control some individuals engaged with community mental health services: ‘… I have a CPN [community mental health nurse] who comes around and who I have regular contact with … someone to talk to, check in … my GP has been supportive … it's been very sort of helpful to be able to talk through a lot of things …’ (participant 10, woman). In addition to traditional services others used strategies that were independent of the mental health service such as using complimentary strategies, monitoring triggers and engaging social supports.

Subcategory 3.2: ‘preserving sense of self’

This describes the strategies used to minimise stigma, and deal and contend with other's perception of them. Individuals were mindful not to state or engage in anything that could be construed as a reason for readmission, opting to conceal certain thoughts or deliberately try to behave in a socially acceptable manner: ‘I'm really afraid to say anything to my husband … I don't give out about people … I think I couldn't start saying any of those things I was saying before that led me to be brought in …’ (participant 44, woman). ‘I have to mind by Ps and Qs because my husband … he'd probably sign me in again’ (participant 39, woman). For other individuals they believed it was easier to isolate themselves as opposed to engage in impression management, with some individuals choosing to distance themselves from the services, in an attempt to forget about their experiences.

Discussion

Main findings and comparison with findings and methodology in previous studies

Previous qualitative international research on people's experiences of involuntary admission and treatment document a complex array of positive and negative experiences. Many individuals report frustration, fear and powerlessness at their loss of autonomy and self-efficacy, as well as lack of information and involvement in decision-making. Other individuals report positive experiences and acknowledge some benefits associated with treatment and care.Reference Katsakou and Priebe11Reference Chambers, Gallagher, Borschmann, Gillard, Turner and Kantaris13 Although these studies provide valuable insight into individuals' experience they largely describe patients’ journeys of care. In contrast, to our knowledge, this is the first study to develop a theoretical model that comprehensively explains individuals' experiences before, during and after involuntary admission and that included a large, diverse sample of individuals. The ToPC moves beyond description of individuals' experiences to provide a theoretical model that identifies the contextual factors and conditions that influence experiences.

Although positive and negative experiences have been reported in previous research involving individuals who have been admitted involuntarily, Katsakou et al Reference Katsakou and Priebe11 highlight the importance of conducting research that explore factors that may impact on positive and negative perceptions. By revealing unquestioned and unspoken practices the ToPC not only addresses this gap, but provides practical examples of how individuals adapt and respond to different control situations, as well as how they endeavour to produce desirable outcomes and avoid undesirable outcomes. In addition, by demonstrating the usefulness of control-enhancing strategies such as ‘encountering humanising care’ and ‘gaining perspective’ the theory provides professionals with a way of understanding how their interactions can help individuals use strategies to preserve control.

The importance of autonomy

It is unclear how the nature and severity of individuals' clinical presentations may have also had an impact on the ability of professionals to provide explanations and relate responsively with them, or how the level of skill of the clinician had an impact. Professionals should strive to minimise coercive interactions before and during involuntary admissions and increase opportunities for individuals to optimise control-enhancing strategies through developing more specific, sensitive and effective interpersonal communication skills. A systematic review and narrative synthesis of individuals' experiences of recovery has identified empowerment as a dimension in personal recovery in mental health.Reference Leamy, Bird, Le Boutillier, Williams and Slade14 Control and a sense of autonomy is central to promoting empowering and positive relationships and is critical to recovery-focused practices. One way practitioners may assist patients to regain and maintain control is to develop a recovery-focused aftercare plan that identifies support mechanisms and an advanced crisis plan prior to discharge. A recent systematic review and meta-analysis of 13 randomised controlled trials, of which 4 investigated advanced statements found that advanced statements were effective in reducing the risk of involuntary admissions by 23%.Reference de Jong, Kamperman, Oorschot, Priebe, Bramer and van de Sande15 This finding potentially suggests that the introduction of a recovery-focused aftercare plan, developed in collaboration, might potentially reduce subsequent involuntary readmission rates.

The ToPC also indicated that individuals regained control through ‘playing ball’, the realisation that individuals could not control certain aspects of their admission and as a result, refocused their attention on those aspects that were under their control. Contextual factors such as previous experience of involuntary admission and advice from fellow patients may have been formative in adopting a ‘playing ball’ strategy. A previous qualitative study,Reference McGuinness, Dowling and Trimble16 which adopted an interpretative phenomenological analysis, identified a similar concept that the authors titled ‘learning the way’. In the study ‘learning the way’ described how some individuals complied with the taking of medication, not because they believed they required or needed it. Over time individuals learned to adopt a compliance strategy rather than argue with professionals, in order to speed up their discharge.

Stigma

The ToPC can be considered in the context of a grounded theory of individuals' experience of going home from psychiatric hospital: a study entitled ‘managing preconceived expectations’ conducted in a large urban area in the Republic of Ireland.Reference Keogh, Callaghan and Higgins17 The similarities between ‘managing preconceived expectations’ and the ToPC relate to the strategies that individuals employed to minimise the stigma experienced from family and society. However, there are also some differences. Individuals in ‘managing preconceived expectations’ were most typically admitted voluntarily. In the ToPC, aspects of ‘preserving sense of self’ – although referring to the strategies for dealing with stigma, also referred to the strategies that individuals used to prevent family members thinking that they needed to be readmitted to hospital. Although the fear of being stigmatised is similar in both theories, many individuals in the ToPC felt that they were judged negatively on the basis that their admission was involuntary as well as the public manner in which some were removed to hospital.

Implications for mental health practice

The ToPC demonstrated the importance of attending to aspects of control throughout the entire course of the admission process. For example, the process of removal to hospital was reported by many individuals as extremely traumatic. However, several positive accounts of humanising care during this difficult process enabled individuals to preserve some control even at this early stage of the admission process. Central to this was the interactions individuals had with those involved in their removal to hospital such as police. Some positive stories also emerged about the impact of meeting empathic flexible professionals, being provided with an explanation, which enabled individuals to regain a sense of control from the outset and, in some instances, even during their removal to hospital.

The perception that professionals were genuine, that they were acting out of concern contributed to individuals having trust in their expertise and in the development of more therapeutic relationships. In addition, allowing individuals the opportunity to participate and/or be involved in some aspect of the involuntary admission and/or treatment influenced their experience of control.

Professionals need to support individuals to regain and maintain control as well as responding to distress and treating illness. As such, promoting control-enhancing strategies should be a significant focus of clinical interactions by providing explanation, involving in and supporting decision-making and providing humanising care.

Limitations

Although the theory was developed, using purposive and theoretical sampling, from a large and diverse sample that broadly represents the range of clinical presentations and sociodemographic backgrounds of people presenting for involuntary care (Bainbridge et al, under review), and therefore has broad applicability, the theory needs to be considered in light of the following limitations. We interviewed individuals 3 months following discharge as we thought this was the point where individuals were likely to have recovered sufficiently and had a significant amount of time to reflect on their experience prior to discussing it with others. However, the retrospective nature of the interviews may have influenced perceptions of the necessity of involuntary admission and introduced a recall bias. A study undertaken in 2011Reference O'Donoghue, Lyne, Hill, O'Rourke, Daly and Larkin18 reported that 1 year after the involuntary admission order was rescinded, the number of individuals who perceived their involuntary detention as necessary dropped from 72 to 60%. A longitudinal design that involved repeated assessments with participants from in-patient to out-patient might have better captured changes over time. Some individuals who were asked to participate did not consent to be interviewed, or were unable to discuss their experiences of involuntary admission, thus the theory was shaped by those who consented. Had those individuals been involved their perspective may have added to the comprehensiveness of the theory developed.

In conclusion, this paper provides clinicians with a theoretical model for understanding individuals' experiences before, during and after being subject to involuntary admission as well as understanding how individuals adapt to being admitted involuntarily. The manner in which clinicians and/or families initially activate and implement involuntary admission procedures has an impact on how individuals appraise the early days of admission to hospital and is critical and formative in the shaping of an individual's overall experience. Where the initial loss of control was minimised, and where individual's regained control earlier, the experience of involuntary admission was more positive. This indicates that in addition to effective interventions during periods of illness exacerbation, clinicians need to develop therapeutic approaches to support individuals with regaining and maintaining control across the entire course of their involuntary admission, and that such approaches are likely to optimise the therapeutic nature of coercive care and future engagement with services.

Funding

This study was funded by the Mental Health Commission: Research Programme Grants in Mental Health Research.

Acknowledgements

We are grateful to the individuals who gave their time to recount their experiences and to our clinical and administrative colleagues who assisted with recruitment.

Appendix

Appendix. 1 Participant quotes within categories

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Figure 0

Table 1 Sociodemographic and clinical data

Figure 1

Fig. 1 The theory of preserving control.

A diagrammatic view of the categories and subcategories of the theory of preserving control. The arrows indicate the direction of progress though the phases with the broken arrow indicating the potential to re-enter the cycle.
Figure 2

Appendix. 1 Participant quotes within categories

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