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Measuring Quality of Life

  • William J. Taylor and Kathryn M. McPherson

Extract

Demonstrating the effectiveness of health care interventions requires valid measurement of the impact, or outcome of those interventions. It is increasingly suggested that Quality of Life (QoL) is the ‘gold standard’ outcome internationally (Bowling 1995) and in Australasia (Mordue & Parkin, 1997). Although a number of QoL measures are now available, questions remain about the definition of the concept itself and the psychometric properties of those measures. A consequence of major concern is that health services research or clinical studies of healthcare interventions using inadequately defined outcomes or invalid measures will in turn produce results that lack validity. This paper explores a number of such issues concerning the concept of QoL and the way it is measured.

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Corresponding author

Rehabilitation Teaching and Research Unit, Department of Medicine, University of Otago, Wellington School of Medicine, PO Box 7343, Wellington, New Zealand. Email: wtaylor@wnmeds.ac.nz

References

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Bergner, M., Bobbitt, R.A, Pollard, W.E., Martin, D.P., & Gilson, B.S. (1976). The Sickness Impact Profile: validation of a health status measure. Medical Care 14(1), 5767.
Bergner, M. (1989). Quality of life, health status, and clinical research. Medical Care 27, S1, 4856.
Billingham, L., Abrams, K., & Jones, D. (1999). Methods of analysis of quality-of-life and survival data in health technology assessment. Health Technology Assessment 3(10), 151.
Bowling, A. (1995). “Quality of life” in social science and medicine. Social Science & Medicine 41(10), 13371465.
Devlin, N., & Williams, A. (1999). Valuing quality of life: results for New Zealand health professionals. New Zealand Medical Journal. 112(1083), 6871.
Devlin, N., & Hansen, P. (1999). Ethical precepts of cost-utility analysis. Otago Bioethics Report 8(2), 1620.
Dolan, P. (1997). Modeling valuations for EuroQol health states. Medical Care 35, 1095–108.
EuroQol Group. (1990). EuroQol — A new facility for the measurement of health-related quality of life. Health Policy 16, 199208.
Krabbe, P.F., Essink-Bot, M.L., & Bonsel, G.J. (1997). The comparability and reliability of five health-state valuation methods. Social Science & Medicine 45, 1641–52.
Hunt, S.M., McKenna, S.P., McEwen, J., Williams, J., & Papp, E. (1981). The Nottingham Health Profile: subjective health status and medical consultations. Social Science & Medicine — Part A, Medical Sociology. 15(3 Pt 1), 221–9.
Hunt, S.M. (1999). Truth, language, and the status quo: implicit philosophies in quality of life measurement. The ISOQOL 6th Annual Conference November 3–6 1999, Barcelona, Spain.
Montazeri, A., Gillis, C.R., & McEwen, J. (1998). Quality of life in patients with lung cancer: a review of literature from 1970 to 1995. Chest 113(2), 467–81.
Mordue, A., & Parkin, D.W. (1997). New Zealand priority criteria project. More use should be made of patient oriented quality of life measures. British Medical Journal 314(7087), 1130–1
Post, M.W.M., de Witte, L.P., & Schrijvers, A.J.P. (1999). Quality of life and the ICIDH: towards an integrated conceptual model for rehabilitation outcomes research. Clinical Rehabilitation 13, 515.
Pratheepwanit, N., Salek, M.S., & Finlay, I.G. (1999). Health-related quality of life assessment in practice. The ISOQOL 6th Annual Conference November 3–6 1999, Barcehna, Spain.
Taylor, W, & McPherson, K.M. (1999a). Measuring Quality of LifeNew Zealand Rehabilitation Association Conference, Auckland, November 1999.
Taylor, W.J., & McPherson, K. (1999b). Measuring health-related quality of life. New Zealand Medical Journal 112, 239240.
Renwick, R., Brown, I., & Nagler, M. (1996). Quality of life in health promotion. Conceptual approaches, issues and applications. Sage, Thousand Oaks.
Ruta, D.A., Garratt, A.M., Leng, M., Russell, I.T., & MacDonald, L.M. (1994). A new approach to the measurement of quality of life. The Patient-Generated Index. Medical Care 32, 1109–26.
Ruta, D.A., Garratt, A.M., & Russell, I.T. (1999). Patient centred assessment of quality of life for patients with four common conditions. Quality in Health Care 8, 22–9.
Wade, D.T. (1992). Meosurement in Neurological Rehabilitation. Oxford: Oxford Medical Publications.
WHOQOL Group. (1998). The World Health Organization Quality of Life Assessment (WHOQOL): development and general psychometric properties. Social Science & Medicine 46(12), 1569–85.
WHOQOL Group (1995). The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Social Science & Medicine 41(10), 1403–9.

General Issues

International Society for Quality of Life Researchhttp://www.isoqol.org/
Fallowfield, L. (1996). Quality of quality-of-life data. Lancet 348, 4212.
Gill, T.M., & Feinstein, A.R. (1994). A critical appraisal of the quality of quality of life instruments. JAMA 272, 619626.
Leplege, A.(1997). The problem of quality of life in medicine. JAMA 278, 4750.
Post, M.W.M., de Witte, L.P., & Schrijvers, A.J.P. (1999). Quality of life and the ICIDH: towards an integrated conceptual model for rehabilitation outcomes research. Clinical Rehabilitation 13, 515.
McDowell, I., & Newell, C. (1996). Measuring Health. A guide to rating scales and questionnaires. (Oxford University Press, New York).
Guyatt, G.H. (1997). Users’ guides to the medical literature. XII. How to use articles about health-related quality of life. Evidence-Based Medicine Working Group. JAMA 277, 12321237.
Econometric methods (and the EuroQpl).
Guillemin, E (1999). The value of utility: assumptions underlying preferences and quality adjusted life years. J Rheum 26, 18611863.
Carr-Hill., R.A. (1992). A second opinion. Health related quality of life measurement — Euro style. Health Policy 20, 321328.
Dolan, P. (1997). Modeling valuations for EuroQol health states. Medical Care 35, 1095108.
The EuroQol Group. (1990). EuroQol — A new facility for the measurement of health-related quality of life. Health Policy 16, 199208.
Gudex, C., Dolan, P., Kind, P. & Williams, A. (1996). Health state valuations from the general public using the visual analogue scale. Quality of Life Research 5, 52131
Hurst, N.P., Kind, P., Ruta, D., Hunter, M., & Stubbings, A. (1997). Measuring health-related quality of life in rheumatoid arthritis: validity, responsiveness and reliability of EuroQol (EQ-5D). British Journal of Rheumatology 36, 5519.
Revicki, D.A. (1992). Relationship between health utility and psychometric health status measures. Medical Care 30, MS27482.
Revicki, D.A., & Kaplan, R.M. (1993). Relationship between psychometric and utility-based approaches to the measurement of health-related quality of life. Quality of Life Research 2, 47787.
Anton, S.F., & Revicki, D.A. (1995). The use of decision analysis in the pharmacoeconomic evaluation of an antidepressant: A cost-effectiveness study of nefazodone. Psychopharmacology Bulletin 31, 24958
Bennett, K.J., & Torrance, G.W. (1996). Measuring health state preferences and utilities: Rating scale, time trade-off, and standard gamble techniques, in Quality of Life and Pharmacoeconomics in Clinical Trials (ed. Spilker, B.) 253266 (Lippincott-Raven, Philadelphia,).
The WHOQOL Group. (1996). What quality of life? The WHOQOL Group. World Health Organization Quality of Life Assessment. World Health Forum 17, 3546
The WHOQOL Group. (1995). The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Social Science & Medicine 41, 14039
The WHOQOL Group. (1998). The World Health Organization Quality of Life Assessment (WHOQOL): development and general psychometric properties. Social Science & Medicine 46, 156985.
The WHOQOL Group. (1998). Development of the World Health Organization WHOQOLBREF quality of life assessment. Psychological Medicine 28, 5518
Renwick, R., Brown, I. & Nagler, M. (1996). Quality of life in health promotion. Conceptual approaches, issues and applications, (Sage, Thousand Oaks,).
Raphael, D., Brown, I., Renwick, R., & Rootman, I. (1997). Quality of life: what are the implications for health promotion? American Journal of Health Behavior 21, 11828.
Renwick, R., Brown, I., &. Raphael, D. (1994). Quality of life. Linking a conceptual approach to service provision. Journal of developmental disabilities 3, 3244.
Raphael, D.et al., (1995). The quality of life of seniors living in the community: a conceptualization with implications for public health practice. Canadian journal of Public Health 86, 22833.
Ruta, D. A., Garratt, A.M., Leng, M., Russell, I.T. & MacDonald, L.M. (1994). A new approach to the measurement of quality of life. The Patient-Generated Index. Medical Care 32, 110926.
Herd, R.M., Tidman, M.J., Ruta, D.A., & Hunter, J.A. (1997). Measurement of quality of life in atopic dermatitis: correlation and validation of two different methods. British Journal of Dermatology 136, 5027.
Ruta, D.A., Garratt, A.M., & I.T., Russell (1999). Patient centred assessment of quality of life for patients with four common conditions. Quality in Health Care 8, 2229.

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