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Schooling Transitions Within the Lifespan of People With an Intellectual Disability: Perceptions and Recommendations of Ageing Mothers*

Published online by Cambridge University Press:  14 May 2013

Iva Strnadová  and
David Evans
Iva Strnadová*
Affiliation:
University of New South Wales, Australia The University of Sydney, Australia
David Evans
Affiliation:
The University of Sydney, Australia
*
Correspondence: Iva Strnadová, School of Education, Faculty of Arts and Social Sciences, University of New South Wales, NSW 2052, Australia. E-mail: i.strnadova@unsw.edu.au
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Abstract

In this paper the authors examine the perceptions of mothers about the schooling transitions, including transitions to postschool options, made by their adult child with an intellectual disability (ID). Twenty mothers of an adult child with an ID living in New South Wales, Australia, and the Czech Republic, aged 48 years or older, were recruited to participate in this study. Mothers were interviewed following a semistructured protocol. The audiotaped interviews were transcribed verbatim, and analysed using a constant comparison analytic approach.

The experiences and issues faced by mothers at differing transitions of their adult child with an ID will be discussed, including issues of school selection, lifelong planning, and engaging with professionals. Common and unique themes within and between each country will be drawn, along with a comparison of findings from recent research reporting on transition experiences of mothers with young children with ID. The concluding discussion will focus on lessons learned about lifelong transition experiences, and pose future directions for enhancing the quality of transitions for persons with special needs and their families.

Keywords

transitionsspecial educationintellectual disabilityparenting
Type
Articles
Information
Australasian Journal of Special Education , Volume 37 , Special Issue 1: Transitions for Students With Special Educational Needs , July 2013 , pp. 64 - 78
Copyright
Copyright © The Authors 2013 

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Footnotes

*

This manuscript was accepted under the Editorship of Michael Arthur-Kelly.

References

Akos, P. (2002). Student perceptions of the transition from elementary to middle school. Professional School Counseling, 5, 339–345.Google Scholar
Akos, P., & Galassi, J. (2004). Middle and high school transitions as viewed by students, parents, and teachers. Professional School Counseling, 7, 212–221.Google Scholar
Barron, D., Violet, J., & Hassiotis, A. (2009). Transition for children with intellectual disabilities. Retrieved from http://www.intellectualdisability.info/life-stages/transition-for-children-with-intellectual-disabilities/?searchterm=Transition%20for%20children%20with%20intellectual%20disabilitiesGoogle Scholar
Bigby, C. (2000). Models of parental planning. In Janicki, M.P. & Ansello, E.F. (Eds.), Community supports for aging adults with lifelong disabilities. Baltimore, MD: Brookes.Google Scholar
Blacher, J. (2001). Transition to adulthood: Mental retardation, families, and culture. American Journal on Mental Retardation, 106, 173–188.2.0.CO;2>CrossRefGoogle ScholarPubMed
Brantlinger, E., Jimenez, R., Klingner, J., Pugach, M., & Richardson, V. (2005). Qualitative studies in special education. Exceptional Children, 71, 195–207.CrossRefGoogle Scholar
Bryman, A. (2004). Social research methods (2nd ed.). Oxford, UK:Oxford University Press.Google Scholar
Burgen, B., & Bigby, C. (2007). The importance of friendships for young people with intellectual disabilities. In Bigby, C., Fyffe, C., & Ozanne, E. (Eds.), Planning and support for people with intellectual disabilities: Issues for case managers and other professionals (pp. 208–214). Sydney, Australia: UNSW Press.Google Scholar
Chen, H.-Y., & Boore, J.R.P. (2010). Translation and back-translation in qualitative nursing research: Methodological review. Journal of Clinical Nursing, 19, 234–239. doi:10.1111/j.1365-2702.2009.02896.xCrossRefGoogle ScholarPubMed
Charmaz, K. (2008). Grounded theory in the 21st century: Applications for advancing social justice studies. In Denzin, N.K. & Lincoln, Y.S.(Eds.), Strategies of qualitative inquiry (3rd ed., pp. 203–242). Thousand Oaks, CA: Sage.Google Scholar
Davies, M.D., & Beamish, W. (2009). Transitions from school for young adults with intellectual disability: Parental perspectives on “life as an adjustment”. Journal of Intellectual & Developmental Disability, 34, 248–257. doi:10.1080/13668250903103676CrossRefGoogle ScholarPubMed
Dempsey, I. (2008). Transition to adult learning. In Foreman, P. (Ed.), Inclusion in action (2nd ed., pp. 37–62). South Melbourne, Australia: Thomson Nelson.Google Scholar
Dew, A., Llewellyn, G., & Gorman, J. (2006). “Having the time of my life”: An exploratory study of women with intellectual disability growing older. Healthy Care for Women International, 27, 908–929. doi:10.1080/07399330600880541CrossRefGoogle ScholarPubMed
Disability Discrimination Act 1992. Retrieved from http://www.ddaedustandards.infoGoogle Scholar
Disability Standards for Education 2005. Retrieved from http://deewr.gov.au/disability-standards-educationGoogle Scholar
Docherty, J., & Reid, K. (2009). ‘What's the next stage?’ Mother of young adults with Down syndrome explore the path to independence: A qualitative investigation. Journal of Applied Research in Intellectual Disabilities, 22, 458–467. doi:10.1111/j.1468-3148.2009.00492.xCrossRefGoogle Scholar
Erlandson, D.A., Harris, E.L., Skipper, B.L., & Allen, S.D. (1993). Doing naturalistic inquiry: A guide to methods. Newbury Park, CA: Sage.Google Scholar
Gargiulo, R., & Kilgo, J.L. (2005). Young children with special needs (2nd ed.). Clifton Park, NY: Thomson Delmar.Google Scholar
Heller, T. (1993). Self-efficiency coping, active involvement, and caregiver well-being throughout the life course among families of persons with mental retardation. In Turnbull, A.P., Patterson, J.M., Behr, S.K., Murphy, D.L., Marquis, J.G., & Blue-Banning, M.J. (Eds.), Cognitive coping, families, and disability (pp. 195–206). Baltimore, MD: Brooks.Google Scholar
Horwitz, S.M., Kerker, B.D., Owens, P.L., & Zigler, E. (2000). The health status and needs of individuals with mental retardation. Washington, DC: Special Olympics.Google Scholar
Jokinen, N.S., & Brown, R.I. (2005). Family quality of life from the perceptive of older parents. Journal of Intellectual Disability Research, 49, 789–793. doi:10.1111/j.1365-2788.2005.00753.xCrossRefGoogle Scholar
Krefting, L. (1991). Rigor in qualitative research: The assessment of trustworthiness. The American Journal of Occupational Therapy, 45, 214–222. doi:10.5014/ajot.45.3.214CrossRefGoogle ScholarPubMed
Lincoln, Y.S., & Guba, E.G. (1985). Naturalistic inquiry. Newbury Park, CA: Sage.CrossRefGoogle Scholar
Lindstrom, L., Doren, B., & Miesch, J. (2011). Waging a living: Career development and long-term employment outcomes for young adults with disabilities. Exceptional Children, 77, 423–434.CrossRefGoogle Scholar
Morningstar, M.E., Kleinhammer-Tramill, P.J., & Lattin, D.L. (1999). Using successful models of student-centered transition planning and services for adolescents with disabilities. Focus on Exceptional Children, 31 (9), 1–19.Google Scholar
Mulroy, S., Robertson, L., Aiberti, K., Leonard, H., & Bower, C. (2008). The impact of having a sibling with an intellectual disability: Parental perspectives in two disorders. Journal of Intellectual Disability Research, 52, 216–229. doi:10.1111/j.1365-2788.2007.01005.xCrossRefGoogle ScholarPubMed
Powers, L.E., Garner, T., Valnes, B., Squire, P., Turner, A., Couture, T., & Dertinger, R. (2007). Building a successful adult life: Findings from youth-directed research. Exceptionality, 15, 45–56.CrossRefGoogle Scholar
Strnadová, I., & Evans, D. (2008a). Examining the range of coping strategies mothers use in caring for a child with an intellectual disability. In Botrell, D. & Magher, G. (Eds.), Researching communities. Sydney, Australia: University of Sydney Press.Google Scholar
Strnadová, I., & Evans, D. (2008b, August). Impact of ID on mothers of school-aged children: Different perceptions in New South Wales and the Czech Republic. Paper presented at the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Cape Town, South Africa.Google Scholar
Strnadová, I., & Evans, D. (2012). Subjective quality of life of women with intellectual disabilities: The role of perceived control over own life in self-determined behaviour. Journal of Applied Research in Intellectual Disabilities, 25, 71–79. doi:10.1111/j.1468-3148.2011.00646.xCrossRefGoogle ScholarPubMed
Strnadová, I., & Hájková, V. (2012). Striving for inclusive education in the Czech Republic. Intervention in School and Clinic, 47, 307–311. doi:10.1177/1053451211430114CrossRefGoogle Scholar
Wehmeyer, M.L., Palmer, S.B., Soukup, J.H., Garner, N.W., & Lawrence, M. (2007). Self-determination and student transition planning knowledge and skills: Predicting involvement. Exceptionality, 15, 31–44.CrossRefGoogle Scholar
Wells, K. (2011). Narrative inquiry. New York, NY: Oxford University Press. doi:10.1093/acprof:oso/9780195385793.001.0001CrossRefGoogle Scholar
World Health Organization. (2007). Atlas: Global resources for persons with intellectual disabilities: 2007. Geneva, Switzerland: WHO Press.Google Scholar
Yin, R.K. (2011). Qualitative research from start to finish. New York, NY: Guilford Press.Google Scholar