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Managing identity in early-stage dementia: maintaining a sense of being valued

  • E. STEEMAN (a1) (a2), J. TOURNOY (a3), M. GRYPDONCK (a2), J. GODDERIS (a4) and B. DIERCKX DE CASTERLÉ (a1)...


Focusing on loss or maintenance of identity in persons with dementia may affect how they are approached and cared for. We performed a longitudinal study of 17 elderly persons with early-stage dementia with the aim of exploring changes in the experience of living with dementia. The major theme – a struggle to be valued – was clearly present in follow-up interviews. However, we observed a gradual shift in the concept of being valued: a shift from ‘being valued for what you do’ toward ‘being valued for who you are’. This progression represents a shift from performance-related core values of identity to those that are existentially related. These findings suggest that the self can be maintained by adjusting to loss.


Corresponding author

Address for correspondence: Els Steeman, Faculty of Medicine and Health Sciences, Department of Public Health, Division of Nursing Science, Ghent University, De Pintelaan 185, Blok A, 9000 Gent, Belgium E-mail:


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