Abramson, T. A. 2015. Older adults: the ‘Panini Sandwich’ generation. Clinical Gerontologist, 38, 4, 251–67.
Aneshensel, C. A., Pearlin, L. I., Mullan, J. T., Zarit, S. H. and Whitlatch, C. J. 1995. Profiles in Caregiving: The Unexpected Career. Academic Press, San Diego.
ASLaRC (Aged Services Unit) 2011. Futures planning for older carers of adults with disabilities. Report to the Department of Family and Community Services NSW, Ageing Disability and Home Care, June, Sydney, NSW.
Australian Bureau of Statistics 2012. Australian Social Trends – December 2012: Older Carers. ABS Catalogue Number 4102.0, Australian Bureau of Statistics, Canberra.
Australian Government Department of Social Services 2014. Planning for the Future of People with Disability: Improving the Lives of Australians. Commonwealth of Australia, Canberra.
Baumbusch, J., Mayer, S., Phinney, A. and Baumbusch, S. 2017. Aging together: caring relations in families of adults with intellectual disabilities. The Gerontologist, 57, 2, 341–7.
Bibby, R. 2012. ‘I hope he goes first’: exploring determinants of engagement in future planning for adults with a learning disability living with ageing parents. What are the issues? A literature review. British Journal of Learning Disabilities, 41, 2, 94–105.
Braithwaite, V. 1992. Caregiving burden making the concept scientifically useful and policy relevant. Research on Aging, 14, 1, 3–27.
Brennan, D., Murphy, R., McCallion, P. and McCarron, M. 2017. ‘What's going to happen when we're gone?’ Family caregiving capacity for older people with intellectual disability in Ireland. Journal of Applied Research in Intellectual Disabilities. Published online 30 June 2017, doi:10.1111/jar.12379.
Cairns, D., Tolson, D., Brown, J. and Darbyshire, C. 2013. The need for future alternatives: an investigation of the experiences and future of older parents caring for offspring with learning disabilities over a prolonged period of time. British Journal of Learning Disabilities, 41, 1, 73–82.
Cohen, M. Z. and Omery, A. 1994. Schools of phenomenology: implications for research. Critical Issues in Qualitative Research Methods, 2, 136–53.
Dillenburger, K. and McKerr, L. 2011. ‘How long are we able to go on?’ Issues faced by older family caregivers of adults with disabilities. British Journal of Learning Disabilities, 39, 1, 29–38.
Elder, G. H., Johnson, M. K. and Crosnoe, R. 2003. The emergence and development of life course theory. In Mortimer, J. T. and Shanahan, M. J. (eds), Handbook of the Life Course. Kluwer Academic/Plenum, New York, 3–19.
Ezzy, D. 2002. Coding data and interpreting text: methods of analysis. In Ezzy, D. (ed.), Qualitative Analysis: Practice and Innovation. Allen and Unwin, Crow's Nest, Australia, 80–110.
Grant, G. 2007. Invisible contributions in families with children and adults with intellectual disabilities. Canadian Journal on Aging/La Revue canadienne du vieillissement, 26, 1, 15–26.
Greenfield, E. A. and Marks, N. F. 2006. Linked lives: adult children's problems and their parents’ psychological and relational well-being. Journal of Marriage and the Family, 68, 2, 442–54.
Heller, T. and Caldwell, J. 2006. Supporting aging caregivers and adults with developmental disabilities in future planning. Mental Retardation, 44, 3, 189–202.
Hole, R. D., Stainton, T. and Wilson, L. 2013. Ageing adults with intellectual disabilities: self-advocates’ and family members’ perspectives about the future. Australian Social Work, 66, 4, 571–89.
Iacono, T., Evans, E., Davis, A., Bhardwaj, A., Turner, B., Torr, J. and Trollor, J. N. 2016. Family caring of older adults with intellectual disability and coping according to loci of responsibility. Research in Developmental Disabilities, 57, 170–80.
Knox, M. and Bigby, C. 2007. Moving towards midlife care as negotiated family business: accounts of people with intellectual disabilities and their families ‘Just getting along with their lives together’. International Journal of Disability, Development and Education, 54, 3, 287–304.
Lopez, K. A. and Willis, D. G. 2004. Descriptive versus interpretive phenomenology: their contributions to nursing knowledge. Qualitative Health Research, 14, 5, 726–35.
Miller, D. A. 1981. The ‘sandwich' generation: adult children of the aging. Social Work, 26, 5, 419–23.
Nolan, M., Grant, G. and Keady, J. 1996. Understanding Family Care: A Multidimensional Model of Caring and Coping. Open University Press, Buckingham, UK.
Petterson, B., Bourke, J., Leonard, H., Jacoby, P. and Bower, C. 2007. Co-occurrence of birth defects and intellectual disability. Paediatric and Perinatal Epidemiology, 21, 1, 65–75.
Pryce, L., Tweed, A., Hilton, A. and Priest, H. M. 2015. Tolerating uncertainty: perceptions of the future for ageing parent carers and their adult children with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 30, 1, 84–96.
Raina, P., O'Donnell, M., Schwellnus, H., Rosenbaum, P., King, G., Brehaut, J., Russell, D., Swinton, M., King, S., Wong, M., Walter, S. D. and Wood, E. 2004. Caregiving process and caregiver burden: conceptual models to guide research and practice. BMC Pediatrics, 4, 1, 1.
Rapley, T. 2004. Interviews. In Seale, C., Gobo, G., Gubrium, J. and Silverman, D. (eds), Qualitative Research Practice. Sage, London, 15–33.
Ryan, A., Taggart, L., Truesdale-Kennedy, M. and Slevin, E. 2014. Issues in caregiving for older people with intellectual disabilities and their ageing family carers: a review and commentary. International Journal of Older People Nursing, 9, 3, 217–26.
Singer, G. H. 2006. Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities. American Journal on Mental Retardation, 111, 3, 155–69.
Soottipong Gray, R., Hahn, L., Thapsuwan, S. and Thongcharoenchupong, N. 2016. Strength and stress: positive and negative impacts on caregivers for older adults in Thailand. Australasian Journal on Ageing, 35, 2, E7–12.
Strauss, A. and Corbin, J. M. (eds) 1998. Basics of Qualitative Research. Second edition, Sage, Thousand Oaks, California.
Thompson, D., Ryrie, I. and Wright, S. 2004. People with intellectual disabilities living in generic residential services for older people in the UK. Journal of Applied Research in Intellectual Disabilities, 17, 2, 101–8.
Torr, J., Strydom, A., Patti, P. and Jokinen, N. 2010. Aging in Down syndrome: morbidity and mortality. Journal of Policy and Practice in Intellectual Disabilities, 7, 1, 70–81.
Walker, C. and Ward, C. 2013. Growing older together: ageing and people with learning disabilities and their family carers. Tizard Learning Disability Review, 18, 3, 112–9.
Walker, R. and Hutchinson, C. 2017. Planning for the future among older parents’ of adult offspring with intellectual disability living at home and in the community: a systematic review of qualitative studies. Journal of Intellectual & Developmental Disability. Published online 18 June 2017, doi:10.3109/13668250.2017.1310823.