Skip to main content Accessibility help
×
Hostname: page-component-7c8c6479df-94d59 Total loading time: 0 Render date: 2024-03-28T17:14:16.269Z Has data issue: false hasContentIssue false

9 - Transition to Adulthood

from Section 2 - Special Considerations

Published online by Cambridge University Press:  25 June 2018

Gianna Locascio
Affiliation:
NYU Langone Health, New York
Beth S. Slomine
Affiliation:
Kennedy Krieger Institute, Baltimore
Get access

Summary

Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'
Type
Chapter
Information
Publisher: Cambridge University Press
Print publication year: 2018

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

1.Stancin, T., Drotar, D., Taylor, H. G., Yeates, K. O., Wade, S. L., Minich, N. M. Health-related quality of life of children and adolescents after traumatic brain injury. Pediatrics. 2002;109(2):21326.Google Scholar
2.Newman, L., Wagner, M., Knockey, A. M., Marder, C., Nagle, K., Sharver, D. The Post-High School Outcomes of Young Adults with Disabilities up to 8 Years After High School, 1–218. A Report from the National Longitudinal Transition Study-2 (NLTS2). (NCSER 2006–3000). Menlo Park, CA: SRI International: 2011. Online Submission. http://nlts2.org/reports/2011_09_02/nlts2_report_2011_09_02_complete.pdfGoogle Scholar
3.Wagner, M., Newman, L., Cameto, R., Garza, N., Levine, P. After High School: A First Look at the Postschool Experiences of Youth with Disabilities. A Report from the National Longitudinal Transition Study-2 (NLTS2). Online Submission; 2005.Google Scholar
4.Todis, B., Glang, A., Bullis, M., Ettel, D., Hood, D. Longitudinal investigation of the post-high school transition experiences of adolescents with traumatic brain injury. J Head Trauma Rehabil 2011;26(2):138149.CrossRefGoogle ScholarPubMed
5.Maslow, G. R., Haydon, A., McRee, A., Ford, C. A., Halpern, C. T. Growing up with a chronic illness: Social success, educational/vocational distress. J Adolesc Health 2010; 49(2): 20612.CrossRefGoogle Scholar
6.American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, Transitions Clinical Report Authoring Group. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics 2011;128(1):182200.Google Scholar
7.Bodenheimer, T., Lorig, K., Holman, H. Patient self-management of chronic disease in primary care. JAMA 2002; 288(19): 2469–75.Google ScholarPubMed
8.Geenen, S. J., Powers, L. E., Sells, W. Understanding the role of health care providers during the transition of adolescents with disabilities and special health care needs. J Adolesc Health 2003;32(2):225233.CrossRefGoogle ScholarPubMed
9.Scal, P, Ireland, M. Addressing transition to adult health care for adolescents with special health care needs. Pediatrics 2005;115(6):1607–12.Google Scholar
10.Gray, W. N., Monaghan, M. N., Gilleland Marchak, J., Driscoll, K. A., Hillard, M. E. Psychologists and the transition from pediatrics to adult health care. J Adolesc Health 2015;57(5):46874.Google Scholar
11.Gioia, G. A., Isquith, P. K. Ecological assessment of executive function in traumatic brain injury. Dev Neuropsychol 2004;25(1–2):13558.Google Scholar
12.Muscara, F., Catroppa, C., Anderson, V. Social problem-solving skills as a mediator between executive function and long-term social outcome following paediatric traumatic brain injury. J Neuropsychol 2010;2(2):44561.Google Scholar
13.Dennis, M., Guger, S., Roncadin, C., Barnes, M., Schachar, R. Attentional–inhibitory control and social–behavioral regulation after childhood closed head injury: Do biological, developmental, and recovery variables predict outcome? J Int Neuropsychol Soc 2001;7(6):68392.Google Scholar
14.Ylvisaker, M., Feeney, T. J. Collaborative Brain Injury Intervention: Positive Everyday Routines. San Diego, CA: Singular Publishing Group. 1998.Google Scholar
15.Hanks, R. A., Rapport, L. J., Millis, S. R. Measures of executive functioning as predictors of functional ability and social integration in a rehabilitation sample. Arch Phys Med Rehabil 1999;80(9):1030–7.Google Scholar
16.Ewing-Cobbs, L., Prasad, M. R., Kramer, L., Cox, C. S., Baumgartner, J., Fletcher, S., et al. Late intellectual and academic outcomes following traumatic brain injury sustained during early childhood. J Neurosurg Pediatrics 2006;105(4 Suppl):28796.Google Scholar
17.Donders, J., Warschausky, S. Neurobehavioral outcomes after early versus late childhood traumatic brain injury. J Head Trauma Rehabil 2007;22(5):296302.Google Scholar
18.Muscara, F., Catroppa, C., Anderson, V. The impact of injury severity on executive function 7–10 years following pediatric traumatic brain injury. Dev Neuropsychol 2008;33(5):62336.Google Scholar
19.Wagner, M., Newman, L., Cameto, R., Levine, P. The Academic Achievement and Functional Performance of Youth with Disabilities. A Report from the National Longitudinal Transition Study-2 (NLTS2). (NCSER 2006–3000). Menlo Park, CA: SRI International; 2006.Google Scholar
20.Anderson, P. Assessment and development of executive function (EF) during childhood. Child Neuropsychol 2010;8(2):7182.CrossRefGoogle Scholar
21.Babikian, T., Merkley, T., Savage, R. C., Giza, C. C., Levin, H. Chronic aspects of pediatric traumatic brain injury: Review of the literature. J Neurotrauma 2015;32(23):1849–60.Google Scholar
22.Chaytor, N., Schmitter-Edgecombe, M. The ecological validity of neuropsychological tests: A review of the literature on everyday cognitive skills. Neuropsychol Rev 2003;13(4):18197.Google Scholar
23.Wiegerink, D., Donkervoort, M., Roebroeck, M. The Rotterdam Transition Profile-Concept 0.2. Rotterdam, Netherlands: University Medical Center; 2007. www.erasmusmc.nl/Reva/Research/transition/RotterdamTransitionProfilev0.2Google Scholar
24.Malec, J. The Mayo-Portland Adaptability Inventory. The Center for Outcome Measurement in Brain Injury; 2005. www.tbims.org/combi/mpaiGoogle Scholar
25.Harrison, P., Oakland, T. Adaptive Behavior Assessment System, 3rd ed. Bloomington, IN: Pearson Education; 2015.Google Scholar
26.Schwartz, L. A., Daniel, L. C., Brumley, L. D., et al. Measures of readiness to transition to adult health care for youth with chronic physical health conditions: A systematic review and recommendations for measurement testing and development. J Pediatr Psychol 2014;39(6):588601.Google Scholar
27.Ferris, M., Bickford, K., Ford, C., et al. UNC TRxANSITION Scale. Ren Fail. 2012;34(6):74453. www.med.unc.edu/transition/transition-tools/starx-questionnaireCrossRefGoogle ScholarPubMed
28.Santa Clara Valley Medical Center (2006). The Center for Outcome Measurement in Brain Injury. www.tbims.org/combi. (Accessed June 9, 2017.)Google Scholar
29.Wilson, B., Alderman, N., Burgess, P. W., Emslie, H., Evans, J. J. Behavior Assessment of Dysexecutive Syndrome. Bury St. Edmunds, England: Thames Valley Test Company; 1996.Google Scholar
30.Gioia, G. A., Isquith, P. K., Guy, S. C., Kenworthy, L. Behavior Rating Inventory of Executive Function, 2nd ed. Lutz, FL: Psychological Assessment Resources; 2015.Google Scholar
31.Grace, J., Malloy, P. F. Frontal Systems Behavior Scale. Lutz, FL: Psychological Assessment Resources; 2001.Google Scholar
32.Cullum, M., Saine, K., Weiner, M. F. Texas Functional Living Scale. Bloomington, IN: Pearson Education; 2009 .Google Scholar
33.Wilson, B., Cockburn, J., Baddeley, A. D. Rivermead Behavioural Memory Test. Flempton, England: Thames Valley Test Company; 1985.Google Scholar
34.Baum, C. M., Morrison, T., Hahn, M., Edwards, D. F., Executive Functional Performance Test. St. Louis, Washington University School of Medicine; 2007.Google Scholar
35.Li, L., Liu, J. The effect of pediatric traumatic brain injury on behavioral outcomes: A systematic review. Dev Med Child Neurol 2013; 55(1): 3745.Google Scholar
36.Malloy, P., Grace, J. A review of rating scales for measuring behavior change due to frontal systems damage. Cogn Behav Neurol 2005;18(1):1827.Google Scholar
37.Levin, H. S., High, W. M., Goethe, K. E., Sisson, R. A., Overall, J. E., Rhoades, H. M. The neurobehavioural rating scale: Assessment of behavioural sequelae of head injury by the clinician. J Neurol Neurosurg Psychiatry 1987; 50(2): 18393.Google Scholar
38.Barrash, J., Tranel, D., Anderson, S. W. Acquired personality disturbances associated with bilateral damage to the ventromedial prefrontal region. Dev Neuropsychol 2000; 18(3): 35581.Google Scholar
39.Butcher, J. N., Graham, J. R., Ben-Porath, Y. S., Tellegen, A., Dahlstrom, W. G., Kaemmer, B. Minnesota Multiphasic Personality Inventory, 2nd ed. Bloomington, IN: Pearson Education; 2009.Google Scholar
40.Morey, L. C. Personality Assessment Inventory. Lutz, FL: Psychological Assessment Resources; 2007.Google Scholar
41.Reynolds, C. R., Kamphaus, R. W. Behavior Assessment System for Children. Bloomington, IN: Pearson Education; 2015.Google Scholar
42.Achenbach, T., Rescorla, L. The Manual for the ASEBA School-Age Forms & Profiles. Burlington, VT: Research Center for Children, Youth, and Families; 2001.Google Scholar
43.Achenbach, T., Rescorla, L. The Manual for the ASEBA Adult Forms & Profiles Burlington, VT: Research Center for Children, Youth, and Families; 1997.Google Scholar
44.American Medical Association. AMA Code of Medical Ethics’ Opinion on Adolescent Care. AMA J Ethics 2014;16(11):9012.Google Scholar
45.American Bar Association Commission on Law and Aging and American Psychological Association. Assessment of Older Adults with Diminished Capacity: A Handbook for Lawyers. Washington, DC: American Bar Association and American Psychological Association; 2005.Google Scholar
46.Donders, J. Civil capacity in transition-age youth with history of central nervous system compromise: A review. Clin Neuropsychol 2017;31(3):50114.Google Scholar
47.Dreer, L. E., Devivo, M. J., Novack, T. A., Krzywanski, S., Marson, D. C. Cognitive predictors of medical decision-making capacity in traumatic brain injury. Rehabil Psychol 2008;53(4):48697.Google Scholar
48.Owen, G. S., Freyenhagen, F., Martin, W., David, A. S. Clinical assessment of decision-making capacity in acquired brain injury with personality change. Neuropsychol Rehabil 2017;27(1):13348.CrossRefGoogle ScholarPubMed
49.Haskins, E. C., Cicerone, K., Dams-O’Conner, K., Eberle, R., Langenbahn, D., Shapiro-Rosenbaum, A., Trexler, L. E. Cognitive Rehabilitation Manual: Translating Evidence-Based Recommendations into Practice. Reston, VA: ACRM Publishing; 2014.Google Scholar
50.Ylvisaker, M., Turkstra, L. S., Coelho, C. Behavioral and social interventions for individuals with traumatic brain injury: A summary of the research with clinical implications. In: Holland, A. L., Ratner, N. B., Turkstra, L. S., editors. Semin Speech Lang 2005;26(4):25667.Google Scholar
51.Toglia, J., Johnston, M. V., Goverover, Y., Dain, B. A multicontext approach to promoting transfer of strategy use and self regulation after brain injury: An exploratory study. Brain Injury 2010;24(4):66477.Google Scholar
52.Kennedy, M. R. T., Coelho, C., Turkstra, L., et al. Intervention for executive functions after traumatic brain injury: A systematic review, meta-analysis and clinical recommendations. Neuropsychol Rehabil 2008;18(3):25799.Google Scholar
53.Ownsworth, T., Quinn, H., Fleming, J., Kendall, M., Shum, D. Error self-regulation following traumatic brain injury: A single case study evaluation of metacognitive skills training and behavioural practice interventions. Neuropsychol Rehabil 2010;20(1):5980.CrossRefGoogle ScholarPubMed
54.Ylvisaker, M., Feeney, T. Executive functions, self-regulation, and learned optimism in paediatric rehabilitation: A review and implications for intervention. Pediatr Rehabil 2002:5(2) 5170.CrossRefGoogle ScholarPubMed
55.Marlowe, W. B. An intervention for children with disorders of executive functions. Dev Neuropsychol 2000;18(3):44554.Google Scholar
56.Wade, S., Stancin, T., Kirkwood, M., Brown, T., McMullen, K., Taylor, H. Counselor-assisted problem solving (CAPS) improves behavioral outcomes in older adolescents with complicated mild to severe TBI. J Head Trauma Rehabil 2014;29:198207.Google Scholar
57.Wade, S., Taylor, H., Cassedy, A., Zhang, N., Kirkwood, M., Brown, T., Stancin, T. Long-term behavioral outcomes after a rondomisze, clinical trial of counselor-assisted problem solving for adolescents with complicated mild to severe traumatic brain injury, J Neurosci 2015; 32: 96775.Google ScholarPubMed
58.Wade, S., Walz, N., Carey, J., McMullen, K., Cass, J., Mark, E., Yeates, K. Effect on behavior problems of teen online problem-solving for adolescent traumatic brain injury. Pediatrics 2011;128:e947-53.Google Scholar
59.Tlustos, S., Kirkwood, M., Taylor, H., Stancin, T., Brown, T., Wade, S. A randomized problem-solving trial for adolescent brain injury: Changes in social competence. Rehabil Psych 2016;61:34757.Google Scholar
60.Wade, S., Carey, J., Wolfe, C. The efficacy of an online cognitive behavioral family intervention in improving child behavior and social competence following pediatric brain injury. Rehabil Psych 2006;51:17989.Google Scholar
61.Wade, S., Walz, N., Carey, J., Williams, K. Preliminary efficacy of a Web-based family problem-solving treatment program for adolescents with traumatic brain injury. J Head Trauma Rehabil 2008;23:36977.Google Scholar
62.Helffenstein, D. A. Wechsler, F. S. The use of interpersonal process recall (IPR) in the remediation of interpersonal and communication skill deficits in the newly-brain injured. Arch Clin Neuropsychol 1982;4(3):13942.Google Scholar
63.Dahlberg, C. A., Cusick, C. P., Hawley, L. A., Newman, J. K., Morey, C. E., Harrison-Felix, C. L., Whiteneck, G. G. Arch Phys Med Rehabil 2007; 88(12):1561–73.CrossRefGoogle Scholar
64.Braden, C., Hawley, L., Newman, J., Morey, C., Gerber, D., Harrison-Felix, C. Social communication skills group treatment: A feasibility study for persons with traumatic brain injury and comorbid conditions. Brain Inj 2010;24(11):1298–310.Google Scholar

Save book to Kindle

To save this book to your Kindle, first ensure coreplatform@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×