Book contents
- Sharing Linked Data for Health Research
- Cambridge Bioethics and Law
- Sharing Linked Data for Health Research
- Copyright page
- Epigraph
- Contents
- Figures
- Tables
- Foreword
- Acknowledgements
- Abbreviations
- Introduction
- Part I Context for Decision Making
- Part II Frameworks for Decision Making
- 4 Human Rights
- 5 Research Ethics
- 6 Law
- Part III Practice and Process of Decision Making
- Glossary
- Index
- Cambridge Bioethics and Law
6 - Law
from Part II - Frameworks for Decision Making
Published online by Cambridge University Press: 02 June 2022
Book contents
- Sharing Linked Data for Health Research
- Cambridge Bioethics and Law
- Sharing Linked Data for Health Research
- Copyright page
- Epigraph
- Contents
- Figures
- Tables
- Foreword
- Acknowledgements
- Abbreviations
- Introduction
- Part I Context for Decision Making
- Part II Frameworks for Decision Making
- 4 Human Rights
- 5 Research Ethics
- 6 Law
- Part III Practice and Process of Decision Making
- Glossary
- Index
- Cambridge Bioethics and Law
Summary
Chapter 6 considers the legal basis on which linked data is used and disclosed for research in the three jurisdictions under consideration. The bodies of law relevant to research using individual-level data without consent are examined. The chapter describes how these bodies of law regulate the use of data and balance the relevant private and public interests in play. The chapter critiques these bodies of law in terms of clarity and consistency, including consistency with the human rights norms and ethical principles discussed in previous chapters.
Keywords
- Type
- Chapter
- Information
- Sharing Linked Data for Health ResearchToward Better Decision Making, pp. 131 - 174Publisher: Cambridge University PressPrint publication year: 2022