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11 - Evaluating quality of life in cancer survivors

Published online by Cambridge University Press:  18 December 2009

Brad Zebrack Ph.D., M.S.W.
Affiliation:
Assistant Professor University of Southern California, Los Angeles, CA
David Cella Ph.D.
Affiliation:
Professor of Psychiatry and Behavioral Science Northwestern University, Evanston, IL
Joseph Lipscomb
Affiliation:
National Cancer Institute, Bethesda, Maryland
Carolyn C. Gotay
Affiliation:
Cancer Research Center, Hawaii
Claire Snyder
Affiliation:
National Cancer Institute, Bethesda, Maryland
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Summary

Introduction

Currently, about 1.27 million new cancer cases are diagnosed each year, and 60% of all persons diagnosed with cancer are expected to be alive at least five years from the time of their diagnosis. Furthermore, the US death rate for all cancers combined has been declining since 1990, so annual growth in the number of individuals living with or beyond cancer is expected. Today, there are approximately 9 million cancer survivors in the US. Based upon 1996–1997 population estimates from the US Bureau of the Census, this represents approximately 3% of the entire population. Some of these individuals can be considered cured, while others still have evidence of active disease. Of the 9 million individuals living with a cancer history, over 1 million were diagnosed more than 20 years ago.

While these statistics indicate increased length of survival for individuals diagnosed with cancer, they give no indication of the quality of life:

Regardless of the type of cancer or the extent of survival, all persons diagnosed with cancer must manage the enduring and complex ways in which cancer transforms the self and everyday life.

(p. 239)

Understanding how individuals who are cancer survivors manage the impact of cancer and experience the transformation of their lives is critical for health care professionals committed to assisting cancer patients and survivors in their recovery, for payers of health care, and for those engaged in policy regarding health insurance, employment, and disability-related rights of these many survivors.

Type
Chapter
Information
Outcomes Assessment in Cancer
Measures, Methods and Applications
, pp. 241 - 263
Publisher: Cambridge University Press
Print publication year: 2004

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