Skip to main content Accessibility help
×
Hostname: page-component-84b7d79bbc-dwq4g Total loading time: 0 Render date: 2024-07-25T12:10:12.603Z Has data issue: false hasContentIssue false

5 - Refusals of treatment in adolescents and young adults

from Section 1 - Core issues in clinical pediatric ethics

Published online by Cambridge University Press:  07 October 2011

Douglas S. Diekema
Affiliation:
Seattle Children's Research Institute
Mark R. Mercurio
Affiliation:
Yale University School of Medicine
Mary B. Adam
Affiliation:
Department of Pediatrics, University of Arizona School of Medicine, Tucson
Get access

Summary

Case narrative

Kristin is a 17-year-old admitted through the emergency department of a children’s hospital, where she presented with severe dehydration and abdominal pain. Her mother accompanied her to the hospital, and her father soon joined them. Kristin has a history of multiple hospital admissions for episodes of severe weight loss and dehydration. She was assigned to the general adolescent medicine service, and diagnosed with acute inflammation of the pancreas and gallbladder secondary to the diagnosis of anorexia nervosa. When asked about her daughter’s medical history, Kristin’s mother denied her daughter had an eating disorder. Her father explained that Kristin had always been a very driven gymnast. With a height of 5′6″ (168 cm), Kristin’s weight upon admission was 79 pounds (36 kg).

Over the next week, as members of the adolescent team tried to engage Kristin directly in a discussion of her health and a treatment plan, Kristin, despite being alert and intelligent, grew agitated and angry in response to any mention of an eating disorder or anorexia, even threatening to “fire” certain providers who upset her. Kristin’s mother largely stood by and asked team members not to upset her daughter. While Kristin had initially allowed nasojejunal feeds and line placement for intravenous (IV) fluids, she later questioned the nurse suspiciously when she hung a new IV bag, asking, “How many calories are in that stuff?” She demanded that the line be removed. The nurse managed to persuade Kristin that the only way she would get better was through IV rehydration and nutrition. The patient acquiesced and did not attempt to remove the line.

Type
Chapter
Information
Clinical Ethics in Pediatrics
A Case-Based Textbook
, pp. 23 - 26
Publisher: Cambridge University Press
Print publication year: 2011

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Alderson, P. 2007 Competent children? Minors’ consent to health care treatment and researchSocial Science and Medicine 65 2272Google Scholar
Alderson, P.Sutcliffe, K.Curtis, K. 2006 Children’s competence to consent to medical treatmentHastings Center Report 36 25Google Scholar
American Academy of Pediatrics, Committee on Bioethics 1995 Informed consent, parental permission, and assent in pediatric practicePediatrics 95 314Google Scholar
Bartholome, W 1995 Letter to the Editor, in response to: Informed consent, parental permission, and assent in pediatric practicePediatrics 95 981Google Scholar
Derish, M.T.Heuvel, K.V. 2000 Mature minors should have the right to refuse life-sustaining medical treatmentJournal of Law, Medicine and Ethics 28 109Google Scholar
Gardner, M.Steinberg, L. 2005 Peer influence on risk taking, risk preference, and risky decision making in adolescence and adulthood: an experimental studyDevelopmental Psychology 41 625Google Scholar
Opel, D.Kelley, M. 2010 DenialHastings Center Report 40 11Google Scholar
Pasupathi, M.Staudinger, U.M.Baltes, P.B. 2001 Seeds of wisdom: adolescents’ knowledge and judgment about difficult life problemsDevelopmental Psychology 37 351Google Scholar
Ross, L.F. 2009 Against the tide: arguments against respecting a minor’s refusal of efficacious life-saving treatmentCambridge Quarterly of Healthcare Ethics 18 302Google Scholar
Tan, J.O. 2003 Conduct and compassion: the anorexia talking?Lancet 362 1246Google Scholar
Tan, J.O.Hope, T.Stewart, A.Fitzpatrick, R. 2006 Competence to make treatment decisions in anorexia nervosa: thinking processes and valuesPhilosophy, Psychiatry, and Psychology 13 267Google Scholar
Weir, R.F.Peters, C. 1997 Affirming the decisions adolescents make about life and deathHastings Center Report 27 29Google Scholar

Save book to Kindle

To save this book to your Kindle, first ensure coreplatform@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×