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Chapter 10 - Adult Life for People with Autism Spectrum Disorders

Published online by Cambridge University Press:  18 January 2019

Fred R. Volkmar
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Yale University, Connecticut
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Print publication year: 2019

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References

Allen, D., Evans, C., Hider, A., et al. (2008). Offending behaviour in adults with Asperger syndrome. Journal of Autism and Developmental Disorders, 38(4), 748758.Google Scholar
Anderson, D. K., Liang, J. W., & Lord, C. (2014). Predicting young adult outcome among more and less cognitively able individuals with autism spectrum disorders. Journal of Child Psychology and Psychiatry, 55(5), 485494.Google Scholar
Arnevik, E. A. & Helverschou, S. B. (2016). Autism spectrum disorder and co-occurring substance use disorder–a systematic review. Substance Abuse: Research and Treatment, 10, 69.Google Scholar
Ayres, M., Parr, J. R., Rodgers, J., et al. (2017). A systematic review of quality of life of adults on the autism spectrum. Autism, doi: 10.1177/1362361317714988.Google Scholar
Ballaban-Gil, K., Rapin, I., Tuchman, R., & Shinnar, S. (1996). Longitudinal examination of the behavioral, language, and social changes in a population of adolescents and young adults with autistic disorder. Pediatric Neurology, 15, 217223.Google Scholar
Bargiela, S., Steward, R., & Mandy, W. (2016). The experiences of late-diagnosed women with autism spectrum conditions: an investigation of the female autism phenotype. Journal of Autism and Developmental Disorders, 46(10), 32813294.Google Scholar
Billstedt, E., Gillberg, I. C., & Gillberg, C. (2005). Autism after adolescence; population-based 13- to 22-year follow-up study of 120 individuals with autism diagnosed in childhood. Journal of Autism and Developmental Disorders, 35, 351360.Google Scholar
Billstedt, E., Gillberg, I. C., & Gillberg, C. (2007). Autism in adults: symptom patterns and early childhood predictors. Use of the DISCO in a community sample followed from childhood. Journal of Child Psychology and Psychiatry, 48, 11021110.Google Scholar
Billstedt, E., Gillberg, I. C., & Gillberg, C. (2011). Aspects of quality of life in adults diagnosed with autism in childhood: a population-based study. Autism, 15, 720.Google Scholar
Bishop-Fitzpatrick, L., Minshew, N. J. & Eack, S. M. (2013). A systematic review of psychosocial interventions for adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(3), 687694. www.ncbi.nlm.nih.gov/pubmed/22825929Google Scholar
Bishop-Fitzpatrick, L., Mazefsky, C. A., Minshew, N. J., & Eack, S. M. (2015). The relationship between stress and social functioning in adults with autism spectrum disorder and without intellectual disability. Autism Research, 8(2), 164173.Google Scholar
Bishop-Fitzpatrick, L., Hong, J., Smith, L. E. et al. (2016). Characterizing objective quality of life and normative outcomes in adults with autism spectrum disorder: an exploratory latent class analysis. Journal of Autism and Developmental Disorders, 46(8), 27072719.Google Scholar
Bishop-Fitzpatrick, L., Minshew, N. J., Mazefsky, C. A., & Eack, S. M. (2017). Perception of life as stressful, not biological response to stress, is associated with greater social disability in adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 47(1), 116.Google Scholar
Blainey, S. H., Rumball, F., Mercer, L., Evans, L. J., & Beck, A. (2017). An evaluation of the effectiveness of psychological therapy in reducing general psychological distress for adults with autism spectrum conditions and comorbid mental health problems. Clinical Psychology & Psychotherapy, 24(6), 14741478.Google Scholar
Blumberg, S. J., Zablotsky, B., Avila, R., et al. (2016). Diagnosis lost: Differences between children who had and who currently have an autism spectrum disorder diagnosis. Autism, 20(7), 783795.Google Scholar
Bolton, P. F., Carcani-Rathwell, I., Hutton, J., et al. (2011). Epilepsy in autism: features and correlates. The British Journal of Psychiatry, 198(4), 289294.Google Scholar
Bolton, P. F., Pickles, A., Murphy, M., & Rutter, M. (1998). Autism, affective and other psychiatric disorders: patterns of familial aggregation. Psychological Medicine, 28(2), 385395.Google Scholar
Borue, X., Mazefsky, C., Rooks, B. T., et al. (2016). Longitudinal course of bipolar disorder in youth with high-functioning autism spectrum disorder. Journal of the American Academy of Child & Adolescent Psychiatry, 55(12), 10641072.Google Scholar
Brewer, N. &Young, R. L. (2015). Crime and Autism Spectrum Disorder: Myths and Mechanisms. London, UK: Jessica Kingsley Publishers.Google Scholar
Brugha, T. S., Doos, L., Tempier, A., Einfeld, S., & Howlin, P. (2015). Outcome measures in intervention trials for adults with autism spectrum disorders; a systematic review of assessments of core autism features and associated emotional and behavioural problems. International Journal of Methods in Psychiatric Research, 24(2), 99115.Google Scholar
Brugha, T. S., McManus, S., Bankart, J., et al. (2011). Epidemiology of autism spectrum disorders in adults in the community in England. Archives of General Psychiatry, 68(5), 459465.CrossRefGoogle ScholarPubMed
Buck, T. R., Viskochil, J., Farley, M., et al. (2014). Psychiatric comorbidity and medication use in adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44(12), 30633071.Google Scholar
Butwicka, A., Långström, N., Larsson, H., et al. (2016) Increased risk for substance use-related problems in autism spectrum disorders: a population-based cohort study. Journal of Autism and Developmental Disorders, 12, 10.Google Scholar
Cassidy, S., Bradley, P., Robinson, J., et al. (2014) Suicidal ideation and suicide plans or attempts in adults with Asperger's syndrome attending a specialist diagnostic clinic: a clinical cohort study. The Lancet Psychiatry, 1(2), 142147.Google Scholar
Cassidy, S., Bradley, L., Shaw, R., & Baron-Cohen, S. (2018) Risk markers for suicidality in autistic adults. Molecular Autism, 9(42).Google Scholar
Cederlund, M., Hagberg, B., Billstedt, E., Gillberg, I. C., & Gillberg, C. (2008). Asperger syndrome and autism: a comparative longitudinal follow-up study more than 5 years after original diagnosis. Journal of Autism and Developmental Disorders, 38, 7285.Google Scholar
Cederlund, M., Hagberg, B., & Gillberg, C. (2010). Asperger syndrome in adolescent and young adult males. Interview, self-and parent assessment of social, emotional, and cognitive problems. Research in Developmental Disabilities, 31(2), 287298, 1862.Google Scholar
Chamak, B. & Bonniau, B. (2016). Trajectories, Long-term outcomes and family experiences of 76 adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 46(3), 10841095.Google Scholar
Chasson, G. S., Harris, G. E., & Neely, W. J. (2007). Cost comparison of early intensive behavioral intervention and special education for children with autism. Journal of Child and Family Studies, 16(3), 401413.Google Scholar
Cheely, C. A., Carpenter, L. A., Letourneau, E. J., et al. (2012). The prevalence of youth with autism spectrum disorders in the criminal justice system. Journal of Autism and Developmental Disorders, 42(9), 18561862.Google Scholar
Chen, J. L., Leader, G., Sung, C., & Leahy, M. (2015). Trends in employment for individuals with autism spectrum disorder: a review of the research literature. Review Journal of Autism and Developmental Disorders, 2(2), 115127.Google Scholar
Chisholm, K., Lin, A., & Armando, M. (2016). Schizophrenia spectrum disorders and autism spectrum disorder. In Mazzone, L. & Vitiello, B. (eds.) Psychiatric Symptoms and Comorbidities in Autism Spectrum Disorder (pp. 5166). Switzerland: Springer International Publishing.Google Scholar
Chowdhury, M., Benson, B. A., & Hillier, A. (2010). Changes in restricted repetitive behaviors with age: a study of high-functioning adults with autism spectrum disorders. Research in Autism Spectrum Disorders, 4, 210216.Google Scholar
Croen, L. A., Zerbo, O., Qian, Y., et al. (2015) The health status of adults on the autism spectrum. Autism, 19(7), 814823.Google Scholar
Davis, T. E. I., Moree, B. N., Dempsey, T., et al. (2011). The relationship between autism spectrum disorders and anxiety: the moderating effect of communication. Research in Autism Spectrum Disorders, 5, 324329.Google Scholar
Dean, M., Harwood, R., & Kasari, C. (2017). The art of camouflage: Gender differences in the social behaviors of girls and boys with autism spectrum disorder. Autism, 21(6), 678689.Google Scholar
DeMyer, M. K., Barton, S., DeMyer, W. E., et al. (1973). Prognosis in autism: a follow-up study. Journal of Autism and Child Schizophrenia, 3, 199246.CrossRefGoogle ScholarPubMed
Dove, D., Warren, Z., McPheeters, M. L., et al. (2012). Medications for adolescents and young adults with autism spectrum disorders: a systematic review. Pediatrics, peds-2012, 130(4), 717726.Google Scholar
Duvekot, J., van der Ende, J., Verhulst, F. C., et al. (2017). Factors influencing the probability of a diagnosis of autism spectrum disorder in girls versus boys. Autism, 21(6), 646658.CrossRefGoogle ScholarPubMed
El Achkar, C. M. & Spence, S. J. (2015). Clinical characteristics of children and young adults with co-occurring autism spectrum disorder and epilepsy. Epilepsy &Behavior, 47, 183190.Google Scholar
Esbensen, A. J., Seltzer, M. M., Lam, K. S., & Bodfish, J. W. (2009). Age-related differences in restricted repetitive behaviors in autism spectrum disorders. Journal of Autism and Developmental Disorders, 39(1), 5766.Google Scholar
Farley, M. A., McMahon, W. M., Fombonne, E., et al. (2009). Twenty-year outcome for individuals with autism and average or near-average cognitive abilities. Autism Research, 2, 109118.Google Scholar
Fein, D., Barton, M., Eigsti, I. M., et al. (2013). Optimal outcome in individuals with a history of autism. Journal of Child Psychology and Psychiatry. 1;54(2), 195205.Google Scholar
Frith, U. (1991). Asperger and his syndrome. In Frith, U. (ed.), Autism and Asperger Syndrome (pp. 136). Cambridge: Cambridge University Press.Google Scholar
Gates, J. A., Kang, E., & Lerner, M. D. (2017). Efficacy of group social skills interventions for youth with autism spectrum disorder: a systematic review and meta-analysis. Clinical Psychology Review, 52, 164181.Google Scholar
García-Villamisar, D., Dattilo, J., & Muela, C. (2017). Effects of therapeutic recreation on adults with ASD and ID: a preliminary randomized control trial. Journal of Intellectual Disability Research, 61(4), 325340.Google Scholar
García-Villamisar, D. & Rojahn, J. (2015). Comorbid psychopathology and stress mediate the relationship between autistic traits and repetitive behaviours in adults with autism. Journal of Intellectual Disability Research, 59(2), 116124.CrossRefGoogle ScholarPubMed
Gillberg, I. C., Helles, A., Billstedt, E., & Gillberg, C. (2016). Boys with Asperger syndrome grow up: psychiatric and neurodevelopmental disorders 20 years after initial diagnosis. Journal of Autism and Developmental disorders, 46(1), 7482.Google Scholar
Gillberg, C. & Steffenburg, S. (1987). Outcome and prognostic factors in infantile autism and similar conditions: A population based study of 46 cases followed up through puberty. Journal of Autism and Developmental Disorders, 17, 273287.CrossRefGoogle ScholarPubMed
Gillespie-Lynch, K., Sepeta, L., Wang, Y., et al. (2012). Early childhood predictors of the social competence of adults with autism. Journal of Autism and Developmental Disorders, 42(2), 161174.Google Scholar
Gotham, K., Marvin, A. R., Taylor, J. L., et al. (2015). Characterizing the daily life, needs, and priorities of adults with autism spectrum disorder from Interactive Autism Network data. Autism, 19(7), 794804.CrossRefGoogle ScholarPubMed
Gotham, K., Brunwasser, S. M., & Lord, C. (2015). Depressive and anxiety symptom trajectories from school age through young adulthood in samples with autism spectrum disorder and developmental delay. Journal of the American Academy of Child & Adolescent Psychiatry, 54(5), 369376.CrossRefGoogle ScholarPubMed
Grandin, T. (2005). Emergence: Labelled Autistic: A True Story. New York, NY: Grand Central Publishing.Google Scholar
Gray, K., Keating, C., Taffe, J., et al. (2012). Trajectory of behaviour and emotional problems in autism. American Journal of Intellectual and Developmental Disabilities, 117(2), 121133.Google Scholar
Green, V. A., Pituch, K. A., Itchon, J., et al. (2006). Internet survey of treatments used by parents of children with autism. Research in Developmental Disabilities, 27(1), 7084.Google Scholar
Halladay, A. K., Bishop, S., Constantino, J. N., et al. (2015). Sex and gender differences in autism spectrum disorder: summarizing evidence gaps and identifying emerging areas of priority. Molecular Autism, 6, 36.Google Scholar
Hanson, E., Kalish, L. A., Bunce, E., et al. (2007). Use of complementary and alternative medicine among children diagnosed with autism spectrum disorder. Journal of Autism and Developmental Disorders, 37(4), 628636.Google Scholar
Happé, F. & Charlton, R. A. (2012). Aging in autism spectrum disorders: A mini-review. Gerontology, 58, 7078.Google Scholar
Hedley, D., Uljarević, M., Cameron, L., et al. (2016). Employment programmes and interventions targeting adults with autism spectrum disorder: A systematic review of the literature. Autism, Article first published online.Google Scholar
Hedley, D., Uljarevic, M., Foley, K. R., Richdale, A., & Trollor, J. (2018). Risk and protective factors underlying depression and suicidal ideation in Autism Spectrum Disorder. Depression & Anxiety, 35(7), 648657.Google Scholar
Helles, A., Gillberg, I. C., Gillberg, C., & Billstedt, E. (2016). Asperger syndrome in males over two decades: Quality of life in relation to diagnostic stability and psychiatric comorbidity. Autism, 21(4), 458469.Google Scholar
Helles, A., Gillberg, I. C., Gillberg, C., & Billstedt, E. (2015). Asperger syndrome in males over two decades: stability and predictors of diagnosis. Journal of Child Psychology and Psychiatry, 56(6), 711718.Google Scholar
Helverschou, S. B., Rasmussen, K., Steindal, K., et al. (2015). Offending profiles of individuals with autism spectrum disorder: A study of all individuals with autism spectrum disorder examined by the forensic psychiatric service in Norway between 2000 and 2010. Autism, 19(7), 850858.Google Scholar
Helverschou, S. B., Steindal, K., Nøttestad, J. A., & Howlin, P. (2017). Personal experiences of the Criminal Justice System by individuals with autism spectrum disorders. Autism, 22(4): 460468. 1362361316685554.Google Scholar
Henninger, N. A. & Taylor, J. L. (2012). Outcomes in adults with autism spectrum disorders: a historical perspective. Autism, 17(1), 103116.Google Scholar
Hirvikoski, T. & Blomqvist, M. (2015) High self-perceived stress and poor coping in intellectually able adults with autism spectrum disorder. Autism, 19(6), 752757.Google Scholar
Hirvikoski, T., Mittendorfer-Rutz, E., Boman, M., et al. (2016). Premature mortality in autism spectrum disorder. The British Journal of Psychiatry, 208(3), 232238.Google Scholar
Hofvander, B., Delorme, R., Chaste, P., et al. (2009). Psychiatric and psychosocial problems in adults with normal-intelligence autism spectrum disorders. BMC Psychiatry, 9, 35.Google Scholar
Holtmann, M., Bölte, S., & Poustka, F. (2007). Autism spectrum disorders: Sex differences in autistic behaviour domains and coexisting psychopathology. Developmental Medicine & Child Neurology, 49(5), 361366.Google Scholar
Hong, J., Bishop-Fitzpatrick, L., Smith, L. E., et al. (2016). Factors associated with subjective quality of life of adults with autism spectrum disorder: self-report versus maternal reports. Journal of Autism and Developmental Disorders, 46(4), 13681378.Google Scholar
Howlin, P. (2005). The effectiveness of interventions for children with autism. Neurodevelopmental Disorders, 69(Suppl), 101119.Google Scholar
Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome for children with autism. Journal of Child Psychology and Psychiatry, 45, 212229.Google Scholar
Howlin, P. & Magiati, I. (2017). Autism Spectrum Disorder: outcomes in adulthood. Current Opinion in Psychiatry, 30(2), 6976.CrossRefGoogle ScholarPubMed
Howlin, P., Mawhood, L., & Rutter, M. (2000). Autism and developmental receptive language disorder – a follow-up comparison in early adult life. II: Social, behavioural, and psychiatric outcomes. Journal of Child Psychology and Psychiatry, 41, 561578.Google Scholar
Howlin, P. & Moss, J. (2012). Adults with Autism Spectrum Disorders. Canadian Journal of Psychiatry, 57(5), 275283.CrossRefGoogle ScholarPubMed
Howlin, P., Moss, P., Savage, S., & Rutter, M. (2013). Social outcomes in mid to later adulthood among individuals diagnosed with autism and average nonverbal IQ as children. Journal of the American Academy of Child & Adolescent Psychiatry, 52(6), 572581.Google Scholar
Howlin, P., Savage, S., Moss, P., Tempier, A., & Rutter, M. (2014). Cognitive and language skills in adults with autism: a 40-year follow-up. Journal of Child Psychology and Psychiatry, 55(1), 4958.Google Scholar
Hutton, J., Goode, S., Murphy, M., Le Couteur, A., & Rutter, M. (2008). New-onset psychiatric disorders in individuals with autism. Autism, 12(4), 373390.Google Scholar
Jacobson, J. W., Mulick, J. A., & Green, G. (1998). Cost–benefit estimates for early intensive behavioral intervention for young children with autism—general model and single state case. Behavioral Interventions, 13(4), 201226.Google Scholar
Jobski, K., Höfer, J., Hoffmann, F., & Bachmann, C. (2017). Use of psychotropic drugs in patients with autism spectrum disorders: a systematic review. Acta Psychiatrica Scandinavia, 135(1), 828.Google Scholar
Jones, L., Goddard, L., Hill, E. L., Henry, L. A., & Crane, L. (2014). Experiences of receiving a diagnosis of Autism Spectrum Disorder: a survey of adults in the United Kingdom. Journal of Autism and Developmental Disorders, 44(12), 30333044.Google Scholar
Joshi, G., Wozniak, J., Petty, C., et al. (2013). Psychiatric comorbidity and functioning in a clinically referred population of adults with autism spectrum disorders: a comparative study. Journal of Autism and Developmental Disorders, 43(6), 13141325.Google Scholar
Kanner, L. (1949). Problems of nosology and psychodynamics of early infantile autism. American Journal of Orthopsychiatry, 19(3), 416.Google Scholar
Kanner, L. (1973). Childhood Psychosis: Initial Studies and New Insights. New York: Winston/Wiley.Google Scholar
Kanner, L. (1971). Follow-up study of eleven autistic children originally reported in 1943. Journal of Autism and Developmental Disorders, 1(2), 119145.Google Scholar
Kerns, C., Kendall, P. C., Berry, L., et al. (2014). Traditional and atypical presentations of anxiety in youth with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 44(11), 28512861. www.ncbi.nlm.nih.gov/pubmed/24902932CrossRefGoogle ScholarPubMed
Kiep, M., Spek, A. A., & Hoeben, L. (2015). Mindfulness-based therapy in adults with an autism spectrum disorder: Do treatment effects last? Mindfulness, 6(3), 637644.Google Scholar
Kim, C. (2013). I Think I Might Be Autistic: A Guide to Autism Spectrum Disorder Diagnosis and Self-Discovery for Adults. Narrow Gauge Press.Google Scholar
King, C., & Murphy, G. H. (2014). A systematic review of people with autism spectrum disorder and the criminal justice system. Journal of Autism and Developmental Disorders, 44(11), 27172733.Google Scholar
Kirby, A. V., Baranek, G. T., & Fox, L. (2016). Longitudinal predictors of outcomes for adults with autism spectrum disorder systematic review. OTJR: Occupation, Participation and Health, 1;36(2), 5564.Google Scholar
Kirkovski, M., Enticott, P. G., & Fitzgerald, P. B. (2013). A review of the role of female gender in autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(11), 25842603.Google Scholar
Kobayashi, R., Murata, T., & Yoshinaga, K. (1992). A follow-up study of 201 children with autism in Kyushu and Yamaguchi Areas, Japan. Journal of Autism and Developmental Disorders, 22, 395411. www.ncbi.nlm.nih.gov/pubmed/1383189Google Scholar
Lai, M. C., Lombardo, M. V., Ruigrok, A. N., & MRC AIMS Consortium. (2017). Quantifying and exploring camouflaging in men and women with autism. Autism, 21(6), 690702.Google Scholar
Lainhart, J. E. & Folstein, S. E. (1994). Affective disorders in people with autism: A review of published cases. Journal of Autism and Developmental Disorders, 24(5), 587601.Google Scholar
Larsen, F. W. & Mouridsen, S. E. (1997). The outcome in children with childhood autism and Asperger syndrome originally diagnosed as psychotic. A 30-year follow-up study of subjects hospitalized as children. European Child and Adolescent Psychiatry, 6, 181190.Google Scholar
Lawson, W. (2000). Life Behind Glass: A Personal Account of Autism Spectrum Disorder. London: JKP.Google Scholar
Lawson, W. (2010). The Passionate Mind: How People with Autism Learn. London: JKP.Google Scholar
Lever, A. G. & Geurts, H. M. (2016). Psychiatric co-occurring symptoms and disorders in young, middle-aged, and older adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 46(6), 19161930.Google Scholar
Lever, A. G., Werkle-Bergner, M., & Brandmaier, A. M., et al. (2015). Atypical working memory decline across the adult lifespan in autism spectrum disorder? Journal of Abnormal Psychology, 24(4), 1014.Google Scholar
Lever, A. G. & Geurts, H. M. (2016). Age-related differences in cognition across the adult lifespan in autism spectrum disorder. Autism Research, 9, 666676.CrossRefGoogle ScholarPubMed
Levy, A. & Perry, A. (2011). Outcomes in adolescents and adults with autism: A review of the literature. Research in Autism Spectrum Disorders, 5, 12711282.Google Scholar
Lockyer, L. & Rutter, M. (1969). A five to fifteen year follow-up study of infantile psychosis: III. Psychological aspects. The British Journal of Psychiatry, 115, 865882.Google Scholar
Lockyer, L. & Rutter, M. (1970). A five to fifteen year follow-up study of infantile psychosis: IV. Patterns of cognitive ability. The British Journal of Social and Clinical Psychology, 9, 152163.Google Scholar
Lord, C., Bishop, S., & Anderson, D. (2015). Developmental trajectories as autism phenotypes. American Journal of Medical Genetics Part C, 169(2), 198208.Google Scholar
Lotter, V. (1974). Social adjustment and placement of autistic children in Middlesex: a follow-up study. Journal of Autism and Childhood Schizophrenia, 4, 11321.Google Scholar
Lounds-Taylor, J. (2017). When is a good outcome actually good? Autism, 21(8), 918919. 1362361317728821.Google Scholar
Maddox, B. B. & White, S. (2015). Comorbid Social Anxiety Disorder in Adults with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 45(12), 39493960. www.ncbi.nlm.nih.gov/pubmed/26243138Google Scholar
Magiati, I. (2016). Assessment in adulthood. In Matson, J. (Ed.), Handbook of Assessment and Diagnosis of Autism Spectrum Disorder (pp. 191207). Switzerland: Springer International Publishing.Google Scholar
Magiati, I., Tay, X. W., & Howlin, P. (2014). Cognitive, language, social and behavioural outcomes in adults with Autism Spectrum Disorders: a systematic review of longitudinal follow-up studies in adulthood. Clinical Psychology Review, 34(1), 7386.Google Scholar
Mandy, W. & Lai, M. C. (2017). Towards sex- and gender-informed autism research. Autism, 21(6), 643645.Google Scholar
Mannion, A., & Leader, G. (2013). Comorbidity in autism spectrum disorder: a literature review. Research in Autism Spectrum Disorders, 7(12), 15951616.Google Scholar
Maras, K., Mulcahy, S., & Crane, L. (2015). Is autism linked to criminality? Autism, 19(5), 515516.Google Scholar
Mavranezouli, I., Megnin-Viggars, O., Cheema, N., et al. (2014). The cost-effectiveness of supported employment for adults with autism in the United Kingdom. Autism, 18(8), 975984.Google Scholar
Mawhood, L., Howlin, P., & Rutter, M. (2000). Autism and Developmental Receptive Language Disorder—a comparative follow-up in early adult life. I: Cognitive and language outcomes. Journal of Child Psychology and Psychiatry, 41, 547559.Google Scholar
Mazzone, L., Ruta, L., & Reale, L. (2012). Psychiatric comorbidities in Asperger syndrome and high functioning autism: diagnostic challenges. Annals of General Psychiatry, 11(1), 16.CrossRefGoogle ScholarPubMed
Mór, C. (2007). A Blessing and a Curse: Autism and Me. London, UK: Jessica Kingsley.Google Scholar
Moss, P., Howlin, P., Savage, S., Bolton, P., & Rutter, M. (2015). Self and informant reports of mental health difficulties among adults with autism findings from a long-term follow-up study. Autism, 19(7), 832841.Google Scholar
Mouridsen, S. E. (2012). Current status of research on autism spectrum disorders and offending. Research in Autism Spectrum Disorders, 6(1), 7986.Google Scholar
Mouridsen, S. E., Rich, B., Isager, T., & Nedergaard, N. J. (2008). Pervasive developmental disorders and criminal behaviour: A case control study. International Journal of Offender Therapy and Comparative Criminology, 52(2), 196205.Google Scholar
Mukaetova-Ladinska, E. B., Perry, E., Baron, M., & Povey, C. (2012). Ageing in people with autistic spectrum disorder. International Journal of Geriatric Psychiatry, 27(2), 109118.Google Scholar
Mukaetova-Ladinska, E. B., & Stuart-Hamilton, I. (2015). Adults with autism spectrum disorder (ASD): service user perspective on ageing transition (s). Journal of Autism, 2(1), 111.Google Scholar
National Institute of Clinical Excellence (NICE). (2012). Autism: recognition, referral, diagnosis and management of adults on the autism spectrum. NHS Evidence. Available at www.nice.org.uk/guidance/cg142.Google Scholar
Nicholas, D. B., Zwaigenbaum, L., Zwicker, J., et al. (2017). Evaluation of employment-support services for adults with autism spectrum disorder. Autism, 22(6), 693702. 1362361317702507.Google Scholar
Nordin, V. & Gillberg, C. (1998). The long-term course of autistic disorders: update on follow-up studies. Acta Psychiatrica Scandinavica, 97(2), 99108.Google Scholar
Orinstein, A., Tyson, K. E., Suh, J., et al. (2015a). Psychiatric symptoms in youth with a history of autism and optimal outcome. Journal of Autism and Developmental Disorders, 45(11), 37033714.Google Scholar
Orinstein, A. J., Suh, J., Porter, K., et al. (2015b). Social function and communication in optimal outcome children and adolescents with an autism history on structured test measures. Journal of Autism and Developmental Disorders, 45(8), 24432463.Google Scholar
Parr, J. (2016). How can we learn more about the lives of adults on the autism spectrum from across the age range, and their relatives. In Wright, E. (Ed.), Autism Spectrum Disorder in Mid and Later Life (pp. 288296). London, UK: Jessica Kingsley Publishers.Google Scholar
Peters-Scheffer, N., Didden, R., Korzilius, H., & Matson, J. (2012). Cost comparison of early intensive behavioral intervention and treatment as usual for children with autism spectrum disorder in the Netherlands. Research in Developmental Disabilities, 33(6), 17631772. www.ncbi.nlm.nih.gov/pubmed/22705454Google Scholar
Piven, J., & Rabins, P. (2011). Autism spectrum disorders in older adults: toward defining a research agenda. Journal of the American Geriatrics Society, 59(11), 21512155.Google Scholar
Piven, J., Harper, J., Palmer, P., & Arndt, S. (1996). Course of behavioral change in autism: A retrospective study of high-IQ adolescents and adults. Journal of the American Academy of Child & Adolescent Psychiatry, 35, 523529.Google Scholar
Rumsey, J. M., Rapoport, J. L., & Sceery, W. R. (1985). Autistic children as adults: Psychiatric, social, and behavioral outcomes. Journal of the American Academy of Child Psychiatry, 24, 465473.CrossRefGoogle ScholarPubMed
Russell, A. J., Murphy, C. M., Wilson, E., et al. (2016). The mental health of individuals referred for assessment of autism spectrum disorder in adulthood: a clinic report. Autism, 20(5), 623627.Google Scholar
Rutter, M., Greenfield, D., & Lockyer, L. (1967). A five to fifteen year follow-up study of infantile psychosis: I. Social and behavioural outcomes. The British Journal of Psychiatry, 113, 11831199.Google Scholar
Rutter, M. & Lockyer, L. (1967). A five to fifteen year follow-up study of infantile psychosis: I. Description of sample. The British Journal of Psychiatry, 113, 11691182.Google Scholar
Roux, A. M., Shattuck, P. T., Cooper, B. P., et al. (2013). Postsecondary employment experiences among young adults with an autism spectrum disorder. Journal of the American Academy of Child & Adolescent Psychiatry, 52(9), 931939.Google Scholar
Roy, M., Prox-Vagedes, V., Ohlmeier, M. D., & Dillo, W. (2015). Beyond childhood: psychiatric comorbidities and social background of adults with Asperger syndrome. Psychiatria Danubina, 27(1), 5059.Google Scholar
Schendel, D. E., Overgaard, M., Christensen, J., et al. (2016) Association of psychiatric and neurologic comorbidity with mortality among persons with autism spectrum disorder in a Danish population. JAMA Pediatrics, 170(3), 243250.Google Scholar
Shattuck, P. T., Roux, A. M., Hudson, L. E., et al. (2012). Services for adults with an autism spectrum disorder. Canadian Journal of Psychiatry, 57(5), 284291.Google Scholar
Shavelle, R. M., Strauss, D. J., & Pickett, J. (2001). Causes of death in autism. Journal of Autism and Developmental Disorders, 31(6), 569576.Google Scholar
Silberman, S. (2016). Neurotribes: The Legacy of Autism and the Future of Neurodiversity. NY: Avery.Google Scholar
Sizoo, B. B., & Kuiper, E. (2017). Cognitive behavioural therapy and mindfulness based stress reduction may be equally effective in reducing anxiety and depression in adults with autism spectrum disorders. Research in Developmental Disabilities, 64, 4755.Google Scholar
Smalley, S. L., McCracken, J., & Tanguay, P. (1995). Autism, affective disorders, and social phobia. American Journal of Medical Genetics Part A, 60(1), 1926.Google Scholar
Spain, D., Happé, F., Johnston, P., et al. (2016) Social anxiety in adult males with autism spectrum disorders. Research in Autism Spectrum Disorders, 32, 1323.Google Scholar
Spain, D., Sin, J., Harwood, L., et al. (2017). Cognitive behaviour therapy for social anxiety in autism spectrum disorder: a systematic review. Advances in Autism, 3(1), 3446.Google Scholar
Spek, A. A., Van Ham, N. C., & Nyklicek, I. (2013). Mindfulness-based therapy in adults with an autism spectrum disorder: a randomized controlled trial. Research in Developmental Disabilities, 34(1), 246253. www.ncbi.nlm.nih.gov/pubmed/22964266Google Scholar
Steinhausen, H. C., Mohr Jensen, C., & Lauritsen, M. B. (2016). A systematic review and meta-analysis of the long-term overall outcome of autism spectrum disorders in adolescence and adulthood. Acta Psychiatrica Scandinavica, 133(6), 445452.CrossRefGoogle ScholarPubMed
Suh, J., Orinstein, A., Barton, M., et al. (2016). Ratings of broader autism phenotype and personality traits in optimal outcomes from autism spectrum disorder. Journal of Autism and Developmental Disorders, 46(11), 35053518.Google Scholar
Szatmari, P., Bryson, S., Duku, E., et al. (2009). Similar developmental trajectories in autism and Asperger syndrome: from early childhood to adolescence. Journal of Child Psychology and Psychiatry, 50, 14591467.Google Scholar
Szatmari, P., Bartolucci, G., Bremner, R., Bond, S., & Rich, S. (1989). A follow-up study of high-functioning autistic children. Journal of Autism and Developmental Disorders, 19(2), 213225.Google Scholar
Tantam, D. (1991). Asperger's syndrome in adulthood. In Frith, U. (Ed.), Autism and Asperger Syndrome (pp. 147183). Cambridge: Cambridge University Press.Google Scholar
Tammet, D. (2006). Born on a Blue Day: A Memoir of Asperger's and an Extraordinary Mind. London, UK: Hodder and Stoughton.Google Scholar
Taylor, L. J., Henninger, N. A., Mailick, M. R. (2015). Longitudinal patterns of employment and postsecondary education for adults with autism and average-range IQ. Autism. 19(7), 785793.Google Scholar
Underwood, L., Forrester, A., Chaplin, E., & McCarthy, J. (2013). Prisoners with neurodevelopmental disorders. Journal of Intellectual Disabilities and Offending Behaviour, 4(1/2), 1723.Google Scholar
Underwood, L., McCarthy, J., & Craig, T. (2016). Autism spectrum disorder among specialist mental health service users with intellectual disability. Research in Developmental Disorders.Google Scholar
van Heijst, B. F. & Geurts, H. M. (2015) Quality of life in autism across the lifespan: A meta-analysis. Autism, 19(2), 158167.Google Scholar
van Steensel, F. J. & Heeman, E. J. (2017). Anxiety levels in children with autism spectrum disorder: a meta-analysis. Journal of Child and Family Studies, 26(7), 17531767.Google Scholar
Venter, A., Lord, C., & Schopler, E. (1992). A follow-up study of high-functioning autistic children. Journal of Child Psychology and Psychiatry, 33, 489507.Google Scholar
Volkmar, F. R. & Cohen, D. J. (1991). Comorbid association of autism and schizophrenia. The American journal of psychiatry, 148(12), 1705.Google Scholar
Webster, A. A. & Garvis, S. (2017). The importance of critical life moments: An explorative study of successful women with autism spectrum disorder. Autism, 21(6), 670677.Google Scholar
Whitehouse, A. J., Line, E. A., Watt, H. J., & Bishop, D. V. (2009). Qualitative aspects of developmental language impairment relate to language and literacy outcome in adulthood. International Journal of Language and Communication Disorders, 44, 489510.CrossRefGoogle ScholarPubMed
Wigham, S., Barton, S., Parr, J. R., & Rodgers, J. (2017). A systematic review of the rates of depression in children and adults with high-functioning autism spectrum disorder. Journal of Mental Health Research in Intellectual Disabilities, 10(4), 247287.Google Scholar
Williams, D. (2005). The Jumbled Jigsaw: An Insider's Approach to the Treatment of Autistic Spectrum ‘Fruit Salads’. London, UK. Jessica Kingsley.Google Scholar
Woodbury-Smith, M. & Dein, K. (2014). Autism spectrum disorder (ASD) and unlawful behaviour: where do we go from here? Journal of Autism and Developmental Disorders, 44(11), 27342741.Google Scholar
Woodman, A. C., Smith, L. E., Greenberg, J. S., & Mailick, M. R. (2015). Change in autism symptoms and maladaptive behaviors in adolescence and adulthood: The role of positive family processes. Journal of Autism and Developmental Disorders, 45(1), 111126.Google Scholar
Woodman, A. C., Smith, L. E., Greenberg, J. S., & Mailick, M. R. (2016) Contextual factors predict patterns of change in functioning over 10 years among adolescents and adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 46(1), 176189.Google Scholar
Wozniak, J., Biederman, J., Faraone, S. V., et al. (1997). Mania in children with pervasive developmental disorder revisited. Journal of the American Academy of Child & Adolescent Psychiatry, 36(11), 15521559.Google Scholar
Wright, S. D., Brooks, D. E., D'Astous, V. D., & Grandin, T. (2013). The challenge and promise of autism spectrum disorders in adulthood and aging: a systematic review of the literature. Autism Insights, 5, 2173.Google Scholar
von Knorring, A. L. & Hägglöf, B. (1993). Autism in northern Sweden. A population based follow-up study: Psychopathology. European Child & Adolescent Psychiatry, 2(2), 9197.Google Scholar

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